bladder cancer

4 years 1 month ago #53038 by Hannah01
bladder cancer was created by Hannah01
Hello all,

Hope my first post is in the right area. My husband was diagnosed with bladder cancer last year and he is only 28. Doctor recommends Cystectomy, we a very concerned especially with him being so young? It is hard to find any info on people under 30 with bladder cancer.

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4 years 1 month ago #53048 by sara.anne
Replied by sara.anne on topic bladder cancer
Statistically, bladder cancer affects more older people, but on rare occasions even teenagers have been diagnosed.

Since your husband is outside the "usual," it would be a very good idea to get an evaluation/2nd opinion at a place that specializes in bladder cancer treatment. Many urologists mostly see and treat prostate conditions and are not always up on the latest in bladder cancer. Your husband needs to be sure that he is receiving the very best, up-to-date care.

If you let us know your geographical location, I am sure that someone on the Forum will have some suggestions for you, if you are not already being treated at such a place.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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4 years 1 month ago #53049 by Jack R
Replied by Jack R on topic bladder cancer
Hannah,

The link below, to a 2013 article archived by the NIH discusses early age bladder cancer, and provides links to additional articles. I hope this will help with your search for information.

www.ncbi.nlm.nih.gov/pmc/articles/PMC3927706/

Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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4 years 1 month ago #53053 by Sean T
Replied by Sean T on topic bladder cancer
My doc keeps saying that because I'm young I have a good chance of a full recovery and I'm 59!

08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Dec 10, 2019 - cancer free!
The following user(s) said Thank You: Hannah01

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4 years 1 month ago - 4 years 1 month ago #53081 by Hannah01
Replied by Hannah01 on topic bladder cancer
Thanks all for the support. Sara i am from Los Angeles....

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4 years 1 month ago #53082 by sara.anne
Replied by sara.anne on topic bladder cancer
You are in an excellent place for bladder cancer evaluation and treatment. My choice would definitely be USC
Institute of Urology.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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