Hope my first post is in the right area. My husband was diagnosed with bladder cancer last year and he is only 28. Doctor recommends Cystectomy, we a very concerned especially with him being so young? It is hard to find any info on people under 30 with bladder cancer.
Statistically, bladder cancer affects more older people, but on rare occasions even teenagers have been diagnosed.
Since your husband is outside the "usual," it would be a very good idea to get an evaluation/2nd opinion at a place that specializes in bladder cancer treatment. Many urologists mostly see and treat prostate conditions and are not always up on the latest in bladder cancer. Your husband needs to be sure that he is receiving the very best, up-to-date care.
If you let us know your geographical location, I am sure that someone on the Forum will have some suggestions for you, if you are not already being treated at such a place.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021