I was extremely fortunate to be able to keep my bladder also. UT Southwestern and MD Anderson are one in the same for research and opinions. Two of the top hospitals. I refused to accept that there would be anything other than a bad cold that will take longer to get over. Small Cell Bladder Cancer is very nasty. DO NOT go on the internet and start doing your own research. There are 6,000,000 opinions and none of them say anything more than gloom and doom. It is attitude that gets you through things. I know what you are about to read in my post will not be encouraging but you can never give up. Chances are they will start you on Platinum Based Chemo for 4-6, 3 day cycles. If possible, hold off on radiation. They can only do it once in the pelvic region. If there are clear margins, fight to keep your bladder and again, no radiation. Keep the radiation option open for when it returns and it more than likely will return. I'm not certain of your age (I am 61) but do you best to fight to keep your bladder. I did and even though it has come back, it is not in the bladder. Close to it, but not inside.
My tumor was larger than my bladder but was protruding from the inside out (a diverticulum, or bulge) so there was an area that they could remove of the bladder, reroute my right kidney and seal it off.
Unfortunately for me, I am now battling Stage 4 (inoperable) small cell (classified as bladder) on my lymph nodes on the outside of my bladder. My right leg swelled up so bad it looked like a tree trunk. The Kidney Specialist mistreated as a blockage for 8 weeks before my Urologist took one look at me and knew what it was. Had 2 different CT scans and a tumor the size of my fist was encapsulating the lymph nodes. Now that I am having radiation, the swelling is gone after 2 weeks. I look forward to beating this again and getting my life back in order.
It is attitude. Find a good physiologist or local support group. Someone other than a family member to talk to. They will say they want to be involved but it takes a toll on them to so find someone to dump 200 pounds of grief, aggravation and just a load of crap on, them leave until the next session. It works.
Absolutely, keep in touch and I wish you the best of luck. We are a small group but we are there for each other. Have to head out to radiation and chemo this morning. Talk to you soon
Richard