Hello, Raya, and welcome to our very exclusive club...wonder why no one ever joins willingly!
Most of us will never know exactly what caused our bladder cancer. Yes, statistics tell us that there are things that seem to be related...smoking is the obvious one, but many many people do not seem to have any particular risk factor.
This is true of most cancer.
You are doing absolutely the right thing in moving your care to a place like
MSK. First of all, with the questions that the path report left hanging, and second with your dissatisfaction with the communication from your current urologist, now is definitely the time to switch. You and your urological team will become best friends and the relationship will continue for a long time, so you want to be comfortable with it. I wish more patients would follow your example.
Yes, you are sort of up in the air about what comes next, and MSK should provide some answers. Unfortunately, your imagination is all you have until then and it is a troublesome friend. It is even possible that MSK may do a second TURB to clarify the situation.
Try not to obsess about this (easy for me to say) and know that you are much closer to some answers.
Please know that we are here for everything from trying to answer questions, to listening to you rant, to commiseration.
Please let us know what happens...and the best of luck to you
Sara Anne