First post, just had TURBT, no path results yet

4 years 9 months ago #51630 by etd5fh
I am 2 days post-TURBT, and waiting for path results from my surgeon. Just getting used to the catheter routine which is not so enjoyable.

I'm 52 with a wife and 2 teenagers, and this whole thing is freaking me out.

I think I have a really good urologist, buy as I read the many posts, it's clear that I need to be sure I'm working with a BC specialist as I progress to the next phase, whatever that may be.

Does anyone have a recommendation for a BC specialist in the southeast Michigan area?

Thank you,
Dan

Dan E

7/16 - Diagnosis
7/16 - TURBT, 5cm, T1 N0 M0
9/16 - nephro tube install
10/16 - ureteral stent install, nephro tube removed
NOW - waiting to start BCG

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4 years 9 months ago - 4 years 9 months ago #51631 by CatherineH
Replied by CatherineH on topic First post, just had TURBT, no path results yet
Hello Dan... Welcome to our forum. I'm sure at 52, this is not a place you expected to be seeking out, but we are glad you found us. Hopefully you can be rid of that catheter soon. And yes, waiting for that path report is so very nerve wracking and scary. It wouldn't be normal if you weren't freaking out a bit, but keep in mind that IF it is bc, it is also very treatable. There are many of us here that can vouch for that.

I am not familiar with your area, but some others here may be as far as any recommendations. You are correct in that a urologist who sees many cases of bladder cancer is of utmost importance. In the meantime, our Treatment Center Finder may be helpful. It is under the Help menu above. Or here is a link:

Treatment Center Finder

Please stay in touch and feel free to post any questions you may have. We are here to help as much as we can by sharing our own experiences and knowledge.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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4 years 9 months ago #51632 by etd5fh
thank you Catherine! I can see this forum will be very helpful and comforting as I deal with this new situation in my life.

Dan

Dan E

7/16 - Diagnosis
7/16 - TURBT, 5cm, T1 N0 M0
9/16 - nephro tube install
10/16 - ureteral stent install, nephro tube removed
NOW - waiting to start BCG

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4 years 9 months ago #51633 by sara.anne
Replied by sara.anne on topic First post, just had TURBT, no path results yet
I join Catherine in welcoming you! Of course, none of us WANT to be here!

Until you get the path report you really don't know what you might be facing, or what your urologist might recommend. I think that would be the first step. Then you can evaluate this information and decide if a second opinion is in order. Members of this forum may have suggestions at that point, if they seem warranted.

And, as Catherine said, most bladder cancer is very treatable.

Wishing you all the best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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4 years 9 months ago #51635 by Alan
I just remember U. of Michigan has a well respected unit. You still want a bladder specialist withing the group. health.usnews.com/best-hospitals/area/mi/university-of-michigan-hospitals-and-health-centers-6440110

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: etd5fh

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4 years 9 months ago #51639 by etd5fh
Thank you Anne. I get my results this Thursday, so at that point at least I know what I'm faced with.

Dan E

7/16 - Diagnosis
7/16 - TURBT, 5cm, T1 N0 M0
9/16 - nephro tube install
10/16 - ureteral stent install, nephro tube removed
NOW - waiting to start BCG

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