I am brand new to the forum & to all things bladder cancer. My dad was officially diagnosed today with high-grade papillary invasive urothelial carcinoma. My head is spinning from all of this. He had a turbt last week to remove a 2mm tumor. Results came back today that the tumor had invaded the bladder wall & part of the muscle. The urologist said that this type of cancer will sometimes spread to the lungs or other parts of the body. He is having a CT scan tonight & the doctor will have the results tomorrow. Everything is happening so fast, I can't even process this. My dad has smoked most of his life, he's 62 but quit cold turkey 2 months ago when he found out he had a bladder tumor. I'm terrified it has spread. The doctor went over some options with him. If it hasn't spread, a RC or chemo & radiation. If it has spread, he said treatment is basically for quality of life. I found this particularly hard to hear. And more difficult to accept.
I have so many questions, I don't even know where to start. I would appreciate hearing from anyone in a similar situation or has gone through this in the past. Encouragement...advice...anything will help. My dad is like my best friend, & I'd trade places with him in a heartbeat if it meant he didn't have to go through this.
I am so sorry to hear about your father. He is fortunate to have you in his corner.
First, please remember that lots of patients live a very full life after having their bladder removed. Even race car driving and scuba diving!!!
The most important thing you can advise your father to do is to be sure that he is being seen at a major center that treats lots of bladder cancer patients and does lots of cystectomies (bladder removal.) If he isn't, he needs to get a second opinion NOW on his condition and his treatment options. He needs a surgeon who has done at least a hundred or more of these and who can offer more than one choice as to which diversion he offers. Any one who does less is still "practicing" and you don't want your father to be a "training exercise." His life depends on it. If you need advice on places where he might seek a consultation, if that seems in order, let us know and some of our members will have suggestions.
While it is important that your dad be treated soon, taking a few weeks to be sure that the treatment is the correct one will be perfectly safe and well worth it.
We are thinking of you and will try to answer any questions you may have.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
I'm sorry to hear about your father. I know how painful it can be to have your father go through this. I lost my father to cancer about 20 years ago when I was 20 through a similar progression. It was really hard to see him go through it, but I am thankful I was there to help him through it.
Stay strong and leverage family and friends for your own support and feel free to ask us questions if you feel lost or need something answered - we are here to help.