New and Looking for specialist in the phi/NJ area

5 years 5 months ago #50402 by RickyInNJ
Hi, first time posting here. 40 yrs old. Received the call last week (1/9) that they found malignant cells in the growth removed during cysto/TUR. I was taken off guard and am a little hazy of all the details of the call. However, I did clearly hear "small" and "low grade" and that I do not need any medicine at this time. Next course of action would be cysto in 3 months for 2 years, then 6 mos and so on. My follow up appt with the urologist is Friday where I will get more details. I will request the pathology reports as well.

I don't know my Dr that well as I've only met him twice for the initial cysto then following TUR surgery. He seems fine but I would still like to get a second opinion to cover my bases. Can anyone in the Philadelphia or Southern NJ area recommend a urologist or BC specialist in the area? If not, maybe a resource to finding someone.

Thank you for your time

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5 years 5 months ago #50403 by sara.anne
Welcome to our very selective club, with rather weird membership requirements! Sorry that you had to join. :(

If indeed your diagnosis is low grade and localized, your urologist is recommending the standard treatment plan ....which is basically a careful watch. You MUST BE SURE TO KEEP THOSE APPOINTMENTS since bladder cancer has the nasty habit of returning.

If you want to seek a second opinion in the Philadelphia area, I used our site's Treatment Center Finder (under HELP at the top of this page)
and found this
Also, if you wanted to travel a bit farther, Johns Hopkins in Baltimore and Memorial Sloan Kettering in NYC are world-famous.

Good luck to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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