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RC/IC scheduled for 12-7-2015

5 years 1 month ago #50051 by wifeofmike
I also watched several you tube videos of people showing how they empty their bags and change their bags. Its very informative to watch and I did learn alot!

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5 years 1 month ago #50050 by MadLove
Dear wifeofmike,

I hope all goes well for both of you on Monday. This is information my family may well need in the near future. I haven't viewed any but there are videos on Youtube that might be helpful to you. I watched several Youtube videos before removing my husband's Foley catheter at home (home removal was actually suggested by our doctor rather than driving two hours to his office). Best wishes.

Husband's journey:
01/2015 1st cystoscopy
03&04/2015 TURBTs-CIS
07/2015 Finished BCGx6
08/2015 biopsy-BENIGN!
10/2015 Finished BCGx3
12/2015 Cysto, redness
01/2016 TURBT, Benign
04/2016 Cysto
05/2016 Finished BCGx3
07&11/2016 Cysto's
1/2017 Finished BCGx3
2/2017 Cysto, redness
3/2017 TURBT, Cysto due 9/2017

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5 years 1 month ago #50049 by sara.anne
It sounds as if you and your husband are quite a team!

From what I have heard from friends (not having the experience myself), your best friend for a while will be the stoma nurse. Good ones are a fount of knowledge that they can share with you. She will get you going. I also understand that many of the companies that supply urostomy supplies are very generous with sending samples so that he can test them out and see what works for him. Plan to start simple with the basics and add complications if it becomes necessary.

Right now, your husband's job is to recover from the surgery. The nurse will get him on the path toward his "new self" and, by then, he and you will have a list of specific questions for the nurse and the supply companies. Take baby steps!!

Best of luck to you both

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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5 years 1 month ago #50047 by wifeofmike
My husband is scheduled for RC/IC at Fox Chase Cancer Center this coming Monday, 12-7-2015. He is 74 years young. He's had CT scans of abdomen and pelvis, CT scan of chest and bone scan and by those results--all clear. At first, his surgeon suggested a round of chemo treatments. We met with the chemo doctor, and because of Mike's renal disease, the doctor felt that the chemo would do more harm than good, so surgery was scheduled. The surgeon feels that a ileal conduit is the beat urinary diversion for Mike, because of scar tissue from radiation for prostate cancer in 2009. My husband is happy with this decision.
At this point, he just wants the surgery over and done with. I want to be able to help him with his urinary diversion. I want to be able to learn everything I can about it. I read all I can at different web sites, but it is confusing. I read about different "stoma creams and powders" and how you have to be careful of the skin around the stoma. I wish there was a book like "Urostomy for Dummies"!
His surgeon and his nurse explained the robotic surgery to us and told us that he would be visited by a stoma nurse many times in the hospital and that the nurse would teach both of us.
I just want to be prepared. I want to be able to help him with the appliance. I guess I'm expecting too much of myself and I'll learn as I go along with my husband.

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