cystscopy

5 years 2 months ago #50113 by gizmo
Replied by gizmo on topic cystscopy
Is it normal to still have blood in urine after almost 4 weeks. My daughter is a nurse and brought home the strips and it showed I still had blood. Just wondering if I should inform my dr or not

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5 years 2 months ago #50072 by gizmo
Replied by gizmo on topic cystscopy
I had my Turbt Nov 16 and here is my pathology. Urothelial Carconima, type Papillary Low grade non invasive lymph nodes absent musculars propria the presence is indeterminate. Dr said we will do nothing but cysctoscopy every 3 months then every 6 months. He was very optimistic and said it was the smallest he had ever seen about the size of the end of pencil lead. Does
anyone think I should get second opinion or just stay with this.

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5 years 4 months ago #49772 by gizmo
Replied by gizmo on topic cystscopy
Thank you I was told nothing but am going to call today and find out more from the office

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5 years 4 months ago #49771 by sara.anne
Replied by sara.anne on topic cystscopy
IF it is a TURB that you are having, it is a "day surgery" procedure. I assume that they told you that you would be having anesthesia and that you could not drive home? If it is a TURB, the usual process is that they put you under, look into the bladder, and take small samples to send to the pathologist for review. It is only after the pathologist looks at the samples and sends his report to your urologist that you will know for sure what you are facing. This can take up to a week.

Most people (especially women) wake up and go home within an hour or so. Very occasionally, particularly with men, a urinary catheter is placed and has to be removed in the next day or so. Even more rarely, if the biopsy is extensive, they may keep a patient overnight.

I have had two of these. Neither caused any unpleasant after effects.

Good luck to you and let us know how it goes.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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5 years 4 months ago #49770 by gizmo
Replied by gizmo on topic cystscopy
I was sort of numb when I left the doctors office I forgot to as if my surgery will be day surgery. Is it usually? I will find out later but was just wondering now. I am to be there Nov 16 at 1pm.

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5 years 4 months ago #49574 by OldEngineer
Replied by OldEngineer on topic cystscopy
Gizmo - let me just add to Sara Anne's excellent reply that the key will be what she said - after the growths are removed, what does the pathology report say? If it is "low grade" and "non-invasive" (appears to be the latter from what he told you; won't know about the former until the path report is done), then you are indeed just in a "watch and wait" mode, and really have little to worry about. If it is "high grade" and "non-invasive" (which is what many of us have - including myself) then you are in "CLOSELY watch" mode and also need to go through some immunotherapy where you have medication placed in the bladder to stimulate an immune response that reduces the likelihood of recurrence and the speed with which a tumor would grow if it did recur. This is called "BCG" therapy. But that is a bridge which you only need to cross if it is "high grade."

Do not be despondent - the condition was caught early, it is indeed very treatable.

By the way - when I was in grade school a million years ago, my nickname (given to me by my classmates because I was oriented towards science and math) was "Gizmo" lol!!

T1 high grade transcell diagnosed 8/14/2015
TURBT 8/21/2015, removed tumor (17mmX14mmX11mm)
Repeat TURBT performed 9/25/2015
Pathology Report: no residual cancer detected
BCG planned starting in October
The following user(s) said Thank You: gizmo

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