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Not quite newly diagnosed

5 years 1 month ago - 5 years 1 month ago #49103 by Alan
Worob, welcome to our "group" & happy you found us but, we are always sorry you have to be here. Also, thanks for your service. I am almost claustrophobic from the few subs I am have been in.

While none of us are doctors and all of us have slightly different diagnosis, I like your plan of attack. Many of us also like the idea of a 2nd opinion at a major teaching or bladder cancer center as so many practices see mostly prostatic cancer. BCG also has been proven to work in many cases. Keep posting as you fight this with questions or simply rants. Many people are here to listen and offer ideas and hope!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 1 month ago #49101 by worob40
I'm a 74 year old retired Navy Vet that spent about 7 years in diesel submarines and smoked from mid 1950 until 1981. I have been following information about other submariners having bladder cancer also.

A bladder tumor was found Oct 2014 and had T1HG removed in December at VA Hospital in Albuquerque. In January I had 6 week treatment with Gemcitabine. On 6 month check up another tumor was seen so had second TIHG and 4 non cancerous tumors removed. I'm to start BCG treatments August 26th for 6 weeks then get check after 6 weeks. I was offered the opportunity to remove bladder but want to see result of BCG before taking any radical steps.

I looked at several clinical trials but didn't see anything that I was willing to gamble on.

My wife of 57 years is very concerned and I'm worried about her as well as myself. Neither of us are sleeping well but are hoping for the best.

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