5 years 1 month ago - 5 years 1 month ago#48841by Jay
I remember when I first started my BCG treatments on Jan. 5th. Then there was the shortage and my second one was on January 26th and then the next 4 weeks. You had mentioned that the delay shouldn't matter much? When you say that, is that because the reoccurrence is a slow process. I don't know how long I had my original tumor which was small, but I'm sort of a stickler when it comes to scheduling things, if possible. So, I guess my inquiry is, (and I know everyone can be different,) is the reoccurrence between maintenance slow or it's enough time to battle it?
Hi Jay! So glad to hear that you are doing well and that the worst part (the surgeries) are behind you.
Also glad to hear that you are going to be doing the maintenance BCG....studies have shown that it does increase the effectiveness of the treatment significantly. Think you are going to have to depend on your doc for advice here...they certainly do not want to give you BCG if there is any chance of your surgical sites note being completely healed.
The fact that you did the first course of treatment means that you have gotten some real good from it already. The delay should not be a problem. But let them know that you are "ready and able."
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society