Carol, your statement "everyone is different" is so true! I was diagnosed with CIS in October 2014 and am so totally blown away with all of it: the grade, the stage, the treatments, the way each and everyone of us respond to the treatments. WOW! So much to learn. So far I have been very, very lucky. Maybe. I always say at any point in time I may be up next....
I have been reading your posts and your symptoms after your surgeries are very similar to mine. I had terrible problems with pain, bleeding and urgency for months. My doctor said I had a very "unhappy bladder" so to speak. My BCG treatments were put on hold for a month after my 2nd turb. I suffered terribly while undergoing the treatments. But here I am almost a year later just getting back to normal. My last cystoscope in January was still showing some irritation. My doctor has elected to wait until May for the next round of BCG. So it will get better. Just a question of when. Everyone is different.
Good luck to you!
Diagnosed April 2014
T1 Gr 3 BC
6 BCG treatments
I've had pain and blood for weeks now - urgency to pee, burning / stinging - etc.
It seems I'm one of those rare cases of Mitomycin reaction. Had another Cisto today - and it hurt like crazy.
Dr. told me my bladder is clear and is healing nicely where he took my cancer out. However, I had what he described as "angry" areas that look like bruises. In effect, the mitomycin did it's job and on me, it *really* did it's job.
I've got some pretty bad irritation going on and they're bleeding.
But he gave me tramadol and I'm thankful for it because I was really hurting bad.
46m, superficial bladder cancer. Just had my first TURB; waiting to find out if it comes back.