My Father

6 years 10 months ago #46466 by tammy9462001
My Father was created by tammy9462001
Hi, my name is Tammie. My dad survived stage 3 parotid cancer in 2003 and has been going back to the mayo clinic since then. A few months ago he told me he was having back pain, sever constipation, and blood in his urine. He made an appointment with the Mayo and was diagnosed with bladder cancer last week. He is reluctant to tell me a lot because he is very protective and I am his only child. He finally told me that he is going back for a Pet scan july 9th and that the Mayo clinic oncologist recommended chemo and bladder removal. He also said they told him if untreated he would have less than a year. I am so scared and confused. I insisted on coming with him to his appointment July 9th even though he does not want me too. I am so scared. If my Dad gets chemo will his life be prolonged? We just my Mom September of 2012 and I am so scared. Any input would be appreciated. Thanks.

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6 years 10 months ago #46467 by Alan
Replied by Alan on topic My Father
Tammie,

Welcome and sorry your Dad has our problem but, there are many caring and answering people on this forum. Mayo is certainly a well respected hospital so that is a plus. I had to google parotid cancer (salivary glands I discovered). 11 years later is unlikely these two are related so treating bladder will certainly be different. I am surprised chemo and bladder are recommended before a Pet Scan (I am not a doctor) but, I assume other diagnostic tests confirmed the bladder cancer such as a cystoscope, CT Scan and a TURB (a surgery to stage and confirm via pathology)? If your Dad's diagnosis is stage 2 or higher the protocol is removal. However removal isn't the end of things,. There are many survivors of many years on this board and I am sure some will chime in. Your Dad is fortunate he has a daughter that cares and it is certainly good that you are there to help, ask questions and encourage. Please check this web site also as many additional topics and issues are addressed here.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 10 months ago #46468 by tammy9462001
Replied by tammy9462001 on topic My Father
Thank you for your reply. He told me they removed a tumor already last week when he was there and then made their recommendations. He is very guarded with what he tells me and I am so scared. We lost my Mom just 18 months ago so I think that is why he is being this way but I wish he would be more open. I am very very scared.

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6 years 10 months ago #46469 by Alan
Replied by Alan on topic My Father
It sounds like the pathology report says stage 2 (invasive), 3 (near the edge of the bladder wall) or even stage 4 (possible metasis). Any of those suggest a cystectomy. Sounds like your Dad doesn't want you to worry which looking from his perspective it might even be the correct thing to say. It is still OK for you to worry! One thing for sure, be there for him and help cut through the clutter with the doctors. That way you both will pick the right path assuming you get enough information! Keep a good attitude-he will need it from you and as stated earlier, there are lots of survivors here! I am linking a wonderful article on possible diversions he may face: my.clevelandclinic.org/services/urinary_reconstruction_and_diversion/hic_urinary_reconstruction_and_diversion.aspx

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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6 years 10 months ago #46477 by CatherineH
Replied by CatherineH on topic My Father
I'm so sorry to hear of your father's diagnosis. Alan is correct in saying he is at one of the best hospitals for treatment. I hope his scan on the 9th shows the best possible outcome as far as any further spread. I am glad you found our forum for moral support as well as information that has been gained by members here as we have navigated through our own diagnosis.

Please feel free to come here whenever you're feeling especially worried, or just need to talk it out. My condolences on the loss of your Mom as well.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 10 months ago #46478 by tammy9462001
Replied by tammy9462001 on topic My Father
Thank you so much. I spoke to his Oncologist's nurse practitioner at mayo today and she clarified some things. He has a T3 N1 tumor. He also has a tumor in the area of his vocal cords. They are wanting to do chemo and then wait and see if they will remove the bladder. I am trying to keep a good attitude for him. He went and worked a while today and came to dinner at my house. He told me tonight he does not want to die but he has accepted the possibility. He is an amazing guy.

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