Hello again - well, after being under the impression from the hospital specialist that Gregs treatment would involve BCG, then removal if that didnt work, we saw our own GP (General Practitioner) this morning - unrelated to thsi diagnosis. He had received a letter from the hospital saying what had been decided regarding Gregs treatnent. They want to try TURBT. This is what the uro whom we saw last week, as a private patient, would have done while doing cytoscopy if he saw any tumours or CIS. We wonder why Greg has never had this treatment after 3 cytos! Also, in the letter to the GP, it said, `cyto showed multiple areas of erythema & the biopsies have come back showing a combination of T1 urothelial carcinoma, with carcinoma insitu also.` We are wondering why the change in treatment plan & TURBT sounds a lot more `user friendly`, for want of a better phrase, than BCG! Can it be successful on this type of BC?Also, it was just by chance that we learned of that letter today because `they` are not good at sending the patient all teh letters, results etc. They make all the decisions & then inform you when it suits! Greg is not due to see the hospital agin till Dec 3 so would have had 6 weeks of thinking there is a good chance he will lose his bladder when they had already decided they could try this other thing!
makes him think he shoudl forget the public system & spend thousands more on a private uro.
thanks again