Chemo before or after RC for invasive BC

11 years 3 months ago #43823 by Knut
Replied by Knut on topic Chemo before or after RC for invasive BC
I did not have cemo before or after my RC in 2004. They stopped with that procedure in the 80s my uro said.

I live in Oslo, Norway and had my surgery there.

I hope things work out well for you.

Sincerely,
Knut

Diagnozed first time April 1th 2004.
Muscle invasive, T3A.
Radical Cystectomy June 29th 2004.
Illeal conduit. Bag on my stommack.

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11 years 3 months ago #43822 by Melle
Replied by Melle on topic Chemo before or after RC for invasive BC
Thank you. I made an appointment online today at Mayo for a second opinion. But I will go ahead with the recommended chemo, since it could be awhile before I could be seen. Thanks to everyone for their advice and comments. I went to the doctor last month thinking I had a UTI and found this instead! So of course like with everyone else, it is a shock. My husband has Non-Hodgkin's lymphoma, he said we are very lucky he doesn't need chemo now too. So that is something to be thankful for.

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11 years 3 months ago #43821 by Babsiebob
Replied by Babsiebob on topic Chemo before or after RC for invasive BC
I had my surgery here in Ocala. I wasn't offered chemo before and my nodes were clean so I didn't need it after. I guess I was lucky or had a Dr that didn't know what he was talking about. I also had an oncologist so I guess maybe he did the right thing. They always tell you on this site to get a second opinion, maybe that would make you feel better. Good luck
Barbara

Dx 4-28-08
pT3a no mo
Rc with Ileal Conduit on 6-09-08
2nd surgery on 6-27-09 for ureter leak
Renal failure on 7-01-09 nephy tube and then stent on 7-09-09
so far so good

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11 years 3 months ago #43819 by sara.anne
Replied by sara.anne on topic Chemo before or after RC for invasive BC
Wherever you go, I would follow the doctors' recommendations there about chemo. Having it before RC, if that is what is recommended, provides the opportunity for any small "seed" tumors to be killed before they have the chance to take hold. It would be quite a while after an RC before you would be strong enough for chemo.

What ever you do, go to a top place (and you seem to have a good choice)!

Best of luck to you.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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11 years 3 months ago #43818 by Melle
Replied by Melle on topic Chemo before or after RC for invasive BC
I am on the eastern coast. Where did you have your surgery? I am considering Shands, Mayo or Moffitt. They are all about a three hour drive from home. I am wondering now if I should just have the surgery before I do anything else, although I figure I may need chemo anyway.

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11 years 3 months ago #43817 by Babsiebob
Replied by Babsiebob on topic Chemo before or after RC for invasive BC
where in Florida are you? I am in Ocala and had muscle invasive stage 3. I had my rc 4 and a half years ago and did not have any chemo before or after. I have an ileal conduit and I am very satisfied with it. Good luck to you and have positive thoughts.
Barbara

Dx 4-28-08
pT3a no mo
Rc with Ileal Conduit on 6-09-08
2nd surgery on 6-27-09 for ureter leak
Renal failure on 7-01-09 nephy tube and then stent on 7-09-09
so far so good

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