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Diagnosed, removed, waiting on biopsy report

7 years 11 months ago #43510 by shihtzudaddy
Toby has always had acid reflux type issues but the past 2 days, since having the 2nd BCG, he had experienced a greater 'reflux/indegestion' issue. As well, it could be a cold since our weather in VA is crazy, but he's had a 'chest cold' feeling and we told his doc that be for the 2nd treatment. Of course they told us about a temp over 102 or so but he has no temp but congestion, sinus, and heartburn/refulx. I'm thinking searsonal issues.
I think Toby is concerned about what 'might' come as side effects or how it 'might' feel. He is a gentle and quiet man so it's really hard for him to voice it. It is easier to worry about the what ifs - rather than the good side. I know the BCG, as with so many treatments in any area of life, can come with side effects that are not pleasant. BUT this is us. We are not flipping out or overreacting. We just want to know it's going to be ok.

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7 years 11 months ago #43508 by Nix
YES! as Sara Anne said......those are very common reactions. The spasms can be very uncomfortable but there are some meds you can try. Ask your Uro about the medications.
Also drink a lot of liquids to move the BCG through your bladder the day of the wash. I know it seems odd to keep drinking water since you are running to the bathroom so much, but it does help in the long run (a little play on words :P
Just keep your eye on the big picture............5 years out and no re-occurrence.......thank you BCG
Good luck, hang in there,

Nancy S
dx Ta 11/06
dx Ta CIS 10/07

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7 years 11 months ago #43507 by sara.anne
YES. That is the answer to your question!! As the BCG takes effect, heightening the immune response to fight the cancer, you feel more and more side effects. Not always so much with the second treatment, but....

I usually spent the afternoon of my treatment with spasms and urgency...spent some of the time just sitting on the pot since it was too much trouble to keep running back. However, by about 4 hours after things started to calm down. I might be achy and fatigued the next day or so.

BUT it was worth it. Four years out and counting and still clear!

Stick with it..you can do it. And remember that if it gets too uncomfortable the dose can be reduced. I was at 1/3 the starting dose by the end.

Sara Annd

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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7 years 11 months ago #43506 by shihtzudaddy
Update: Last Wednesday was his first BCG treatment and all went great. The entire week has been good, not much faigue and frequency slowed down.

Yesterday and this morning he saw a few particles and drops of blood. Today was 2nd BCG and he couldn't hold it in the full 2 hrs. 1.45 but that's close enough I guess- it has to be. He's having lots of burning and spasms so it didn't go as smooth today as it did last week. However he had it done at 12 noon today and it's 5 p.m. now. He went right to bed and resting. He feels the urge to pee and has taken meds for spasms but they aren't doing anything this time.

Is it normal to have things get worse with each treatment? Is is normal to have the burning which he did not have with the last BCG.

He did have a little blood in the urine when they spinned it but not enough to skip the treatment.

I feel we were very lucky not to have anything go wrong last week when you never know what to expect for the 1st one.

Thanks again to all of your helpful heart!
Kathy & Toby

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7 years 11 months ago #43438 by upnorth
I agree with Mike. Scoping should not lead to any kind of problem that I know of. I get probed every 90 days, and never had a problem with it.

I had my wife come in with me on the last visit so she could see what went on. My Urologist put the scope up on the monitor so she could see for herself that the bladder was clear of any cells, (Thus proving that I am just as good looking on the inside, as I am on the outside.) B)

After the last visit I went home for 5 or 6 hours to rest up and waited for the urgency to ease up. Then headed out on a weekend camping trip to relax and enjoy my "All Clear" report.

I hope you get some answers today. Let us know how it went as soon as you can.


Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 11 months ago #43426 by mmc
Stretching the urinary tract is not going to be an issue. They aren't using half inch hose. :) It's not really stretching anything anyway. They have to push through the prostatic sphincter but other than that it is just "passing through".

Since they found more so fast they probably want to look to be sure there isn't more. Frankly, I think it is more likely they missed the CIS the first time but there isn't really a way to know for sure. It seems appropriate to scope anyway given your (both) level of concern.


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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