Kevin
Glad you found us. Sorry you needed to but glad you did. Be sure to use lots of lube stuff on that catheter. That's like the worst part. You can get a leg bag to use to go out but I sure wouldn't recommend running around town with a night sized bag. You will wind up in one of those "people of Walmart".
You will more than likely be treated with BCG. That is very successful for CIS. That is what I had but I had problems with BCG. that was back in 2006. Study up on that.
Ask questions and just know that this is very treatable! Do some research on Dr. Lamm. He has done tremendous research on BCG and his treatment protocol is the gold standard. CIS Is always high grade and is very aggressive so no messing around with this. Stay on top of this, always follow up with your uro, and follow the maintenance protocol.
All the best!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...