Thanks, I figured Saturday night might not be the best time to post but I can wait for some help. I just got back from being at the hospital all day and thought i would throw it out there and see if our neobladder survivors had some suggestions.
From some of the other posts I read last night, i was able to reassure Mike today that feeling like you have been hit by a Mack truck is quite normal and so is the feeling pretty depressed and "fragile" is what we call it. Tears are never too far off for either of us.
This all happened very quickly. we thought he had a bladder infection at the end of November and by Xmas he was not better from 2 rounds of antibiotics so I pushed for a cystoscopy. We were at a small hospital and they said all was fine. NOT! so, on new year's eve I took him to the Ottawa General for a second opinion and tada, he had another cysto and they found something, sent it off to pathology and the next thing you know, it's off to surgery to have your bladder, prostate and a bunch of lymph nodes removed. Pretty scary stuff especially for a guy who never gets sick.
I look forward to the responses I get from the other guy. Maybe this will help me keep my sanity...remember I said maybe
Monique
