new to this, looking for reassurance

9 years 2 months ago #41396 by m2stevens
new to this, looking for reassurance was created by m2stevens
Hi,

I am new to this forum and hoping some of you can provide me with a little reassurance.

My husband, Mike, aged 60 was diagnosed with a highly aggressive bladder cancer in January. They just did a RC and gave him a neobladder on Feb. 29 here in Canada. According to everyone here, we got the best doctor possible. He was trained at the Mayo Clinic and I figure they usually take the smart guys at the Mayo so we are in good hands.

The doc told us the surgery went very well and the fact that Mike was in good health otherwise made him a great candidate.

He is still in hospital and my question to you is about the nausea. He has not really been able to eat much of anything since the surgery. He is nauseated at the smell of any food and he says that nothing tastes "right". did any of you experience this? I'm worried because he obviously is losing weight and doesn't have much strength to go for his walks. He is managing to do at least one round of the floor he is on but that's about it.

Any suggestions?

Also, how long were you on pain meds? I am sure that is what is causing the nausea but they have changed his meds a bunch of times and nothing seems to make it better. they keep giving him anti-nausea stuff but to no avail.

Hope I haven't rambled on too much.

Any insight would be nice.

thanks

Monique

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9 years 2 months ago #41397 by upnorth
Replied by upnorth on topic new to this, looking for reassurance
M2stevens:

Hello, and welcome to our club. I am truly sorry that you'r husband and you have to join.

There are anti nausea medications available. I don't know why they haven't been given to him yet. I have not had a RC done yet but many of our members have.

They will be better able to answer your questions. Please be patent I know you have been through a lot, and I am sure they will be on line to help you as soon as possible.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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9 years 2 months ago #41398 by upnorth
Replied by upnorth on topic new to this, looking for reassurance
P.S. You can read through some of the past postings, while you'r here. You will find a wealth of knowledge there.

On Sunday nights we have a open Chat session, please come and join us. There are many members attending, and it can get a little confusing. But we will walk you threw it.

Remember you are not alone we can and will help your and your husband any way we can.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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9 years 2 months ago #41399 by m2stevens
Replied by m2stevens on topic new to this, looking for reassurance
Thanks Mark for the quick response. I will wait and see what the RC/neobladder folks have to say. He has been given anti-nausea meds, halidol, zofran and even good ole gravol but nothing seems to work.

That's why I am hoping we can get his pains meds down and hopefully his appetite back. He used to have a big appetite.

At least the bonus gift is that the Dr. said his surgery was a text book surgery and went exactly as he had hoped. |Now we will hope that the "hockey puck" sized tumor that was in the bladder and was not typical according to the doc, along with the prostate and lymph nodes will all come back ok.

Monique and Mike (in absentia)

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9 years 2 months ago #41400 by upnorth
Replied by upnorth on topic new to this, looking for reassurance
Monique,

Wow a hockey puck size tumor is huge. By the way I am from northern Minnesota so I know how big a hockey puck is. Now as for the rest of the group they may need to Google it. :laugh:

Hang in there. Were all in this together.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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9 years 2 months ago #41401 by m2stevens
Replied by m2stevens on topic new to this, looking for reassurance
Yeah, I worried that the Hockey Puck reference might be lost on non-Canadians but I figured with a login name of Upnorth I might find one person who knew what that was. :)

I will continue to read the past posts.

Take care.

Monique

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