Update from Warren

New update...I did the first BCG yesterday and not only didn't I have any symptoms it actually made things better! I don't know how that worked but the spasms are definitely better if not gone.

I switched doctors and had a long meeting with my new doctor Wednesday and came up with a "plan"....BCG and bladder-cams. The first time a T1 tumor shows up again it's off to the hospital for an RC. Ta tumor and it's more BCG. I told him my biggest concern was to not let this get to stage 2 and he agreed to take the bladder sooner than later.

Any how, I'm sure that by the end of this I will have symptoms from the BCG, at least I hope, that way I will know it is working. Take care, Warren.

My tube stayed in 2 weeks. So slept on the couch. Day bag, nite bag, blah blah blah. But sure was nice to get it removed. Hope your battle plan is having positive results now.

Thanks, she is 17 now, not so easy to carry any more But her, her brother and Jude are what I worry about, not so much me. I had a few matches with death already from fishing. The last time while I was drowning they were all I could think of and how hard it was going to be on them. Same with this now, it's leaving them, causing them pain that hurts.
I don't know if I can do the positive thing, I'm bad at looking up the numbers, watching the operations on utube, doing the math. But like I tell Jude, I've been on a bonus life for the last 15 years, this has all been extra. Warren.

THINK POSITIVE!!

I can tell from your picture you have alot riding on you shoulders. If the cancer gets worse you have to go after it with everything you got. You seem like a strong willed guy. I know you will beat this.

Mark

Howdy, once I got the catheter out the spasms stopped, but I am still taking the meds for them because after the first TURBT I still was getting them all the way up to this re-do. I started taking the yellow dye pills again today to stop the burning and they are working now. Ya, after the water was drained I had to make sure it didn't come out too fast because it was burning on the way out. But I figured at least I could controle how bad it was going to hurt vs them doing it and deciding they wanted to do it fast to get over with! Ouch.
I am hoping for a good report Monday, of course the doom and gloom in me already has it raised to stage 2 , T2-G3...hopefully I am wrong but that is what I am preparing to hear, we will see. Thanks, Warren.