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9 years 4 months ago #39143 by Herb
Well, up to this post you have had 49 replies, and this convinces me of one thing; the folks on here are loving,tolerant, caring and people who have had many life experiences dealing bladder cancers. If you want to wish upon a star called 'B17/Laetrile' you are most certainly free to do so. I have gone through a RC, and it was frightening, painful and made me adjust my life in ways I never conceived of --- however, getting rid of my cancerous prostate and bladder after BCG and Chemo did not work certainly made more sense to me than seeing if appricots seeds would save me!

Age 72 had radical 9/11/10 have conduit everything is fine, grateful to be a cancer survivor. Lost Dad and Brother to Cancer both in their 50's.

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9 years 4 months ago #39137 by horace
No problems DD. I know where you and Mike are coming from.


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9 years 4 months ago #39136 by dieseldoc

I to am relieved.
No hard feelings? I have seen too many people die needlessly In car wrecks and in fires. I have saved a lot of people But losing one is to many. And to see some one risk their live just upsets me. I have a hard time putting what is in my head to words. so if I have offended you, I sorry!

T1,NO,MO battling bladder cancer since 2005

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9 years 4 months ago #39135 by mmc
Yes, my impression was it was going to the only treatment and I didn't see anything to the contrary when I said please add conventional treatment. Didn't ever so don't try it in addition if you don't want (except for the caution on toxicity of dose).


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 4 months ago #39133 by Cynthia
Horace, You have given the impression that you were considering B17 as your only treatment. I am relieved that you are thinking of it as a complimentary treatment as an addition to your traditional treatment. I am sure you know that when ever anyone does complimentay theorpy you should let your mediacal team know so that they can be aware of keeping check on possible problems or mixing of treatments. I am sure you would have gotten a different responce here if it had been understood that you were not thinking of doing only B12 as your only treatment. We do talk of complimentary theropy here on a regualar basis but we have never ran into anyone who gave the impression they were going to forgo other treatment when they have high grade cancer. Keep us updated on your treatment path we are here to support and listen.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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9 years 4 months ago - 9 years 4 months ago #39131 by horace

We have thousands of survivors here and not one has come forward to say they personally have had success with B17/Laetrile does that fact not give you pause for thought?

Yes it does but then again there are several possible explanations for this.

It seems to me the cohort of people in this forum are very much into conventional therapies and not complementary/alternative therapies - this is clearly the "culture" here.

There is a stigma with the use of B17. From earlier posts, it is clear there are some strongly held views on its use. These can dissuade people from posting.

And just as there was no-one who ventured to say they had a positive experience with B17, there was also no-one who ventured to say they had a negative experience.

So the fact that there were no responses to my request does not indicate that any conclusions can be drawn.

As I clearly said in my post, I would not dissuade anybody from taking conventional treatment. From my short study of the matter it seems bladder cancer can be the most conventionally treatable of the cancers with the prospect of excellent life expectancy.

The last thing I will say is that B17 need not be seen as an alternative therapy but as a complementary therapy.


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