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New to the site, going through treatment

9 years 1 week ago #38666 by mmc

Welcome to the team!


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 2 weeks ago #38661 by sara.anne
Jason, welcome to a group you probably didn't want to join!! I know that you will find a great deal of information here and a lot of people who have "been there, done that!"

It sound as if you are in good hands. And a second TURB (the biopsy procedure) is the way to go. Some urologists don't do this and it is very common to miss some the first time around. In my case, the second biopsy showed CIS which was a bit scary, but after BCG I am now three years clean!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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9 years 2 weeks ago #38658 by pietrzyk

I found this site and wanted to say hello and mention my story.

Last month I was diagnosed with T1/S1 high grade bladder cancer.

I have already gone through the surgery (6/13) to have the tumor removed. I have also gone in, a few weeks later (7/11), to have a second biopsy to test random areas of the bladder and the original site to confirm all of the tumor has been removed. The great news is that the doctors have said to have got it all and none of the follow up biopsys have indicated any cancer cells!

Two days ago (7/26), I started BCG treatment to prevent any further tumors or the cancer from coming back.

Finally, I am hopeful, have a wonderful support group (one that may now includes you all), I plan to beat this, and I hope to develop some additional support and friendships on here as well.


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