The biggest thing for now is not to panic. Once you get a handle on this you’ll need to become your own patient advocate and push for answers. Also, with this cancer, get second opinions. If it is T2, it can be very treatable. Your doc should have told you what grade the cancer is along with it being invasive T2.
If you have any questions or need opinions concerning doctors or hospitals, ask. Pat can give you information on all the experts and where to find it. All of us here have been through this. Just don’t panic.
5.24.10 Final staging T2G3 7.28.10 Started Gemcitabine, Cisplatin neoadjunctive chemotherapy
11.2.10 RC with NEO 11.18.11 First year CT shows possible liver tumor
12.8.11 Confirmation of TCC BC mets to the liver 6.27.12 Final round of Dose Dense MVAC
7.26.12 Final scans showed no tumor or no...
do NOT let this uro touch you again. You must have this re-done by an experienced bladder cancer surgeon. If you tell us where you are located we'll find you someone. AND this should be done in the next couple of weeks as what he left is just going to seed and get worse.
T2 means that the tumor has invaded into the muscle. If the doctor said he didn't get it all, that may mean he did not get a full margin (cancer free tissue all the way around the tumor).
So it could mean that you are T2 or it could be higher.
Regardless, both of these are indicators that you should now get to a top bladder cancer specialist at one of the top hospitals for bladder cancer. Let us know where you are located and we may be able to recommend a top doctor near you.
If you are already T2, it almost doesn't matter if it is high grade or low grade because if it is in the muscle, the likely next step is bladder removal. This is called cystectomy.
Are you male or female? That can make a difference regarding what bladder replacement option would be best. It all depends on what else they find when they do the follow up scans and once they get in there and see what they have to work with.
Sorry to hear about your diagnosis. Many of us have been in your shoes. I got my neobladder over two and half years ago and I'm doing fine. You need to get copies of your lab reports (pathology). You can get this by going to the hospital where your TURBT was done (call ahead) and signing for it. You will also want to get your slides (the slides with the tissue that the pathologist looked at).
Your doctor should know everything you need for getting a 2nd opinion. If he doesn't help in the process then you can do it all yourself.
No question is a dumb question so feel free to ask and we'll do our best to answer.
had turbt surgery on thurday doctor call on monday an wanted to se e me on wensday aready new it was bad news to quick to be goodews said he couldnt get it all still little peace in mussel and said it was t2 and not much more eccept it was localise in one spot anwanted to do surgery to cut out the one spot was new at this an i didnt know whst t2 ment an he didnt give me much more info excet i shhould get a chest xray an he will set a surery date which is sept 22 seem like a long time to wait an did anybody ever hear of cutting a small spot out of the bladder with same day surgery this doctor is making me very nervous should i get a second opion an can someboby tell me what t2 means i pretty sure there should be more numbers or letters after t2can somebody read an answer my question please
T2 g3 CIS 8/04
Chemotherapy & Radiation 10/04-12/04
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society