This is that Mom again. My son has completed his round of Mitomycin 40 mg and recently had a cystoscopy to check things out. These are portions of his e-mail to me with the new updates:
I didn’t get the news I was hoping for today after Dr. Grubb’s cystoscopy. I was able to watch the monitor while the camera was in my bladder, and there is a new “area of concern” at the very top (12:00 o’clock) of the bladder. It looks a little like a wart, which is different than the manner in which CIS presents itself. We have two options:
A) Have a surgical biopsy (under anesthesia…same thing as before) and TUR (transurethral resection). Wait four weeks. Begin a 6-week cycle of BCG. The problem: my history of bleeding after these procedures precludes BCG treatment.
Begin a 6-week BCG cycle immediately. Have a camera cystoscopy (under anesthesia at the hospital) after that cycle. In the event the cystoscopy determines a biopsy / TUR is required, they can just do it then while I’m already loopy.
He is going for Option B and has scheduled six BCG treatments. Dr. Grubb is going to confer with Dr. Kibell, a senior member of his team, but I have already scheduled six BCG’s starting next week (finishing on MON 08/13/07). I had to leave a urine specimen, too, and they’ll perform cytology and FISH (Fluorescence In Situ Hybridization) tests on the sample.
Dr. Grubb mentioned that the leaders in the field have become more aggressive in recommending bladder removal (cystectomy) in patients that are not responding to any of the standard intravesical treatments (BCG / Mitomycin / Interferon). Sure would like to avoid that.
Has there been any discussion on this website on bladder removal? FISH?
Thanks,
Mom