Urachal Adenocarinoma - confused and scared

I am so relieved that you went back for other options. The more I read about the augmentation and the potential complications, the more concerned I became for you.

The doctor was probably trying to offer you a bladder sparing alternative since you are so young, but I think you have made a mature and wise decision, albeit a very difficult one. There are many here who can help you with information and answer questions about RC and any issues that might arise during your recovery.

Best wishes and I will keep you in my thoughts and prayers...

I have done some searching since reading your post. It sounds like your surgeon is talking about performing bladder augmentation (augmentation cystoplasty) which is generally to increase volume after removing a portion of a diseased bladder. This may give you more information to ask your questions if in fact that is what they are recommending.

Remember that reading about EVERY surgical procedure is scary just like reading the potential side effects of any medication makes you not want to take it. Maybe you could contact him and ask if this is correct so that you can do your own research and feel like you are better informed going forward. He should be able to explain to you WHY he would choose this procedure and HOW he thinks it will benefit you over other options, as well as RISKS/COMPLICATIONS.

Hello Annalee... I am so sorry to hear about your diagnosis. I posted a reply to you in the other thread before I read this one. I know how shocked you must be right now because I, and most everyone on this site, knows how hearing those words nearly knocks you to your knees... even more so at only 35 years old.

As I quickly found out, there isn't much information out there on bladder adenocarcinomas since they are in the "rare" category which makes this even scarier to deal with. I see you have already gotten a second opinion which is good. Did both doctors agree on the course of treatment for your surgery? It helps to have confidence in your doctor as you go through this so I hope you can get your concerns satisfied by discussing them with your surgeon. It's only natural to be scared and concerned, even with the best of doctors because when it's happening to YOU, it's impossible not to have those feelings.

The partial cystectomy has worked very well for me but I did not have to have any repair done other than just suturing up the tumor site at the dome where the wall was removed. What size is your tumor? Mine was relatively small (1.6 cm) but had invaded into the first half of the wall (T2a), so maybe the size is why some repair work has to be done in your case. Since colon tissue is used for urinary diversions, it must be compatible with the bladder and is why they propose to use it that way. I haven't heard of that, but in theory it makes sense.

You've obviously educated yourself on several aspects of bladder cancer and surgeries, and gotten a second opinion which is good. Some of those reports and statistics are pretty daunting, but treatments have improved since most of those were compiled. You are young and strong which will help in your post surgery recovery. We are all here for you.