newly diagnosed

13 years 2 months ago #36411 by Nix
Replied by Nix on topic newly diagnosed
Great news!!!! I will also be watching and following along :laugh:

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
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13 years 2 months ago #36409 by mmc
Replied by mmc on topic newly diagnosed
Well that's certainly good news! Congrats!!!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
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13 years 2 months ago #36408 by motomike
Replied by motomike on topic newly diagnosed
Great news on the ALL CLEAR. I’ll be watching for your 3 month post and wishing you the best then. Lets look forward to the all clear posts becoming habit forming for years to come. :)

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010
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13 years 2 months ago #36407 by CatherineH
Replied by CatherineH on topic newly diagnosed
Congratulations on getting a good report and diagnosis of low grade non-invasive. I know you are relieved. I hope the 3-month check up continues to show clear results. :woohoo: :woohoo: :woohoo:

Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
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13 years 2 months ago #36405 by a7wood
Replied by a7wood on topic newly diagnosed
I do have the pathology report. It says low grade noninvasive. It also says that the case has undergone an intradepartmental consult for QI/QA purposes at the hospital and consulting pathologist concur with the above findings. My next appointment is for three months for possible new occurrences.
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13 years 2 months ago #36404 by mmc
Replied by mmc on topic newly diagnosed
Don't want to be a party pooper, but you really need to get the pathology report.

Large cancerous tumor isn't quite enough information to declare no further treatment. Once you have the pathology report back, you may want to get a 2nd opinion from a top bladder cancer hospital.

If bladder cancer is diagnosed, the diagnosis should get confirmed from a top doc in a top bladder cancer hospital and regular follow-up (even if it is only a cysto and cytology test done every three months.

If the pathology came back low grade T0, that's likely a watchful waiting approach (cysto and cytology every 3 months for a two years or so and then every 6 months for a a period of time). Anything higher than that (e.g. high grade or T1 or higher) would require more.

I hope it was T0 and low grade and that you are on track for the "let's just keep an eye on things" approach! :)
Let's just be sure by checking out that pathology report.

Best,
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
The topic has been locked.
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