I've been lurking for a few days reading different threads and thought I'd introduce myself. I was diagnosised on 11-24-10 after having painless hematuria on a couple of occasions the week prior. Luckly, my primary doctor ordered a CT urogram and sent me to a Urologist in less than a weeks time after I went to him.
I had a TURBT done on 11-24 with one tumor aggregate measure of 3 x 3 x 1 with initial pathology of Non-invasive papillary urothelial carcinoma, favor high grade. The local hospital in Binghamton, NY sent the slides out for a 2nd opinion, but as of now I'm not sure where they went or when they'll be back. They were looking into it this afternoon and I'll check Monday morning and turn the heat up a bit if needed
The local Uro has me scheduled to start BCG on 12-17 with no repeat TURBT first. I've got an appointment for a 2nd opinion scheduled at Sloan Kettering with Dr. Dalbagni on 12-14 assuming the local hospital gets the slides fowarded to him in time. If a repeat TURBT is needed before the BCG I hope he'll speak up.
Being only 39 years old I'm a little shell shocked and surprized by this diagnosis to say the least. I'm glad there a places like this where you can find info and connect with others going thru the same thing you are. Right now I think it's the uncertantity that's the hardest to deal with. Sometimes I wonder if too much info is just as bad as not enough. Feel free to offer any advice if you think there's something I've overlooked or missed. Thanks!