scared

10 years 8 months ago #35170 by Patricia
Replied by Patricia on topic scared
Eileen,
your doctor is very well known in the field of prostate and renal cancers. I wonder how much bladder cancer he see's and treats in a year? Have you asked that question..its important.
For your consult you should have your path report and your slides to be examined and any other tests you may have had. you only need sign for them from each department at the hospital.
You're in a top area for expert bladder cancer specialists.
As for detection...my gyn spotted it in a very simple cost effective urinalysis...microscopic blood in the urine. He advised i see a uro. Its just not a routine test anymore and should be.
I wish you the best and if you need another referral i'll be happy to give it to you.
pat

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10 years 8 months ago #35171 by eileen
Replied by eileen on topic scared
Thanks

I do not know any of this

I work in the city but live on Long Island

My Uroligist who did the turbt referred me to him

I certainly do not have to use him--I just know time is of the essence since uro said it invaded muscle. I have cigna PPO insurance

thanks all for your help

was going for consult with this guy on tuesday and was asked that uro fax the path and blood. I would have though he would have done this already?

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10 years 8 months ago #35172 by eileen
Replied by eileen on topic scared
If you have a good name, please refer

Thank you for your help

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10 years 8 months ago #35173 by sara.anne
Replied by sara.anne on topic scared
Welcome to our group, Eileen...although I am sorry that you found us the way you did! Some advice. Calm down a bit (I know, it is hard) and take a deep breath. Yes, there is some urgency to get your situation under control, but this means to get it done in a few weeks, not months. A week spent getting yourself to the right bladder cancer center is a week well spent. I am sure that Pat has the names of some really good people in the NYC area. You do want someone who deals with a lot of bladder cancer...not just prostate.

I KNOW how you are feeling. My diagnosis hit me out of the blue and I was STUNNED. Like you, I had a long series of "UTI's" and NEVER had any blood in my urine, even after diagnosis. Have finally come to grips with this disease, with a lot of help from the people on this forum, and life looks good. I had CIS, have just finished my BCG treatments. So far, so good. I am well aware that this can come back, and know that I can face it if it does.

Best of luck to you, and, if you wish, we will be with you all the way.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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10 years 8 months ago #35176 by Denise
Replied by Denise on topic scared
Eileen,

I understand your fears. My presenting symptoms wih bladder cancer were UTI's, frequency and urgency. I never had any visible blood in my urine. As a result it took me 6 months to get a diagnosis. I too had a high grade, very large tunor.

But the good news is that I did not have any mets. I had chemotherapy and radical cystectomy. It is now 2 years plus and I am still disease free!

My thought are with you that your outcome will be as good as mine.

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10 years 8 months ago #35179 by eileen
Replied by eileen on topic scared
thanks Pat


I have a request to them for an appointment

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