your doctor is very well known in the field of prostate and renal cancers. I wonder how much bladder cancer he see's and treats in a year? Have you asked that question..its important.
For your consult you should have your path report and your slides to be examined and any other tests you may have had. you only need sign for them from each department at the hospital.
You're in a top area for expert bladder cancer specialists.
As for detection...my gyn spotted it in a very simple cost effective urinalysis...microscopic blood in the urine. He advised i see a uro. Its just not a routine test anymore and should be.
I wish you the best and if you need another referral i'll be happy to give it to you.
Welcome to our group, Eileen...although I am sorry that you found us the way you did! Some advice. Calm down a bit (I know, it is hard) and take a deep breath. Yes, there is some urgency to get your situation under control, but this means to get it done in a few weeks, not months. A week spent getting yourself to the right bladder cancer center is a week well spent. I am sure that Pat has the names of some really good people in the NYC area. You do want someone who deals with a lot of bladder cancer...not just prostate.
I KNOW how you are feeling. My diagnosis hit me out of the blue and I was STUNNED. Like you, I had a long series of "UTI's" and NEVER had any blood in my urine, even after diagnosis. Have finally come to grips with this disease, with a lot of help from the people on this forum, and life looks good. I had CIS, have just finished my BCG treatments. So far, so good. I am well aware that this can come back, and know that I can face it if it does.
Best of luck to you, and, if you wish, we will be with you all the way.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
I understand your fears. My presenting symptoms wih bladder cancer were UTI's, frequency and urgency. I never had any visible blood in my urine. As a result it took me 6 months to get a diagnosis. I too had a high grade, very large tunor.
But the good news is that I did not have any mets. I had chemotherapy and radical cystectomy. It is now 2 years plus and I am still disease free!
My thought are with you that your outcome will be as good as mine.