scared

10 years 8 months ago #35181 by GKLINE
Replied by GKLINE on topic scared
Eileen

Welcome to the site. Sorry to hear your story though. It is a familiar story for us.

First of all. Once the enormous surprise has stopped hitting you, it is time to take a few DEEP Breaths. You are going to survive this. With the help of your Dr. and your own powerful will, You will put this behind you.

Mike has posted a chart on this site of the "path of Bladder cancer Care." It will help you follow along the course of treatment. Find this chart. It will help you plan ahead and chart your progress.

This site is filled with people who have survived bladder cancer in its many forms. We have come out the other side as "super determined" survivors who are bent on helping you too. Their stories and advice are often serious and unforgiving. We can also be a cheer squad for you when you need that. (Kind of like a 5 hour energy drink) We can even be humorous about all of this. :laugh:

Please keep us in you loop..... once you have us on your side we can be kind of relentless in our efforts to get you cancer free! :cheer:

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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10 years 8 months ago #35185 by eileen
Replied by eileen on topic scared
Good lord--Pat I cannot even find mailbox now (lol)

Yes made a request for an appointment at place you referred me to

Thanks

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10 years 8 months ago #35186 by Patricia
Replied by Patricia on topic scared
look up at the top below where you log in and it should say..Eileen you have one new message or whatever...click that and it will take you to your mailbox...pat

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10 years 8 months ago #35187 by jj803
Replied by jj803 on topic scared
Hi Eileen,

Although it is inaccurate, many urologists use the term invasive to mean muscle wall invasion or more and do not include lamina propria invasion in invasive category. This is unfortunate as it is inaccurate and leads to miscommunication. I agree with Mike that since RC is recommended it is probably T2 or more, but some do recommend RC for T1 so the only way to know for sure is to ask or get the path report. I also agree with Mike that life without a bladder and without bc is pretty great. I hope all works out well for you.

jj

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10 years 8 months ago #35198 by eileen
Replied by eileen on topic scared
Thanks all for all your help

went to NYU dr and am completely confident and honestly, it may not be the best decision, but best for me. I totally conncted with this Doctor. Path report showed it invaded detrusor muscle--plus I had two tumors not one.

I am getting scans done saturday at NYU (MRI--YUK and scan of chest as I had lung cancer years ago) --if a go, I will get surgery on the 15th of this month (Merry Christmas)--if no go, chemo till February then surgery. If it expanded, then a differet regimen.

He did an internal on me and when he pressed on my bladder when doing so, I wanted to cry the pain was so bad. He said bladder is expanded--could be from TURBT or tumor is still there.

Got path report--there were two tumors, one slide showing muscularis propria invasion. My doc is getting slides

thanks for all your help everyone!!!!! I feel so much more connected when I can touch base with others that have gone through this.

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10 years 8 months ago #35201 by mmc
Replied by mmc on topic scared
Eileen,

Well...now you have the info and a plan.
That's a good thing.

Did you discuss a particular diversion? Does this surgeon have lots of experience with that particular diversion with women?
This is really important when it comes to outcomes.

Of course it sucks that it has been confirmed as muscle invasive, but it isn't as bad as you thought it might be. Hope all goes well on your other checks so you can proceed with the surgery without complication or added risk.

All the best!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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