As others have noted, neobladders are statistically more problematic for females, although many do just as well as men. There tends to be more problems with continence, both too little and too much in female patients. And although it is true that the sensation is different than the normal bladder, I have absolutely no problem knowing when mine is becoming full. You are partially right in that ileal conduits are an older procedure, they are, however they are totally appropriate for many patients and many are perfectly happy with them. This was my back up plan should the neobladder have been medically inadvisable and I am sure I would have adapted to that. I think that we are marvelously able to adapt to our diversions and most folks seem to be quite happy with their diversion, even if it has some quirks. None are a perfect replacement and require an adaptation, but none seem to interfere with life style. Of course if you want to wear a bikini, an ileal conduit would probably require some personal strength, but anyone who can go through this has that strength. No matter what diversion you pursue, you need a surgeon with extensive experience with the diversion. Best wishes,
9 years 9 months ago - 9 years 8 months ago#35165by mmc
Check out this link.
To Neo or Not to Neo-That is my question
It is from back when I asked the question about different types of diversions. Many people had great information. Click the links to read information as well as reading the responses that people gave.
My surgeon outlined the possibilities but he clearly preferred that I go with the ileal conduit. I learned later that it might have been because of my age. I’m 70. The keymo and surgery went well so I am now getting used to dealing with the stick on bag. I get upset with the unplanned leaky bag but as my technique improves this becomes less common. I’m sure there will be a wonderful day in the future when I accept the bag as just a part of my daily routine. I’m not quite there yet so I reserve the right to cuss and rant and rave at the damn bags for ruling my life! Of course there is the overpowering result of all this medical stuff and that is my cancer free diagnosis. That makes it all worth it.
I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010
Pat and Mike are our resident gurus! I bookmarked one of their researched sites on diversions. Excellent! http://my.clevelandclinic.org/services/urinary_reconstruction_and_diversion/hic_urinary_reconstruction_and_diversion.aspx
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.