a little confused,shocked and scared

14 years 4 months ago #3351 by lhpdogs
Replied by lhpdogs on topic a little confused,shocked and scared
Stacey, I woke up after my TURBT (and they removed a large tumor during it), my Mom drove me home, and I was just a little tired, and it hurt to pee for several weeks. But nothing debilitating - nothing overwhelming, other than I was waiting for the path report for the next couple of days...I was not catheterized at all when I awoke; it was all in all not a bad experience for spending the morning in a hospital - so please don't get too upset up front - be positive. My urologist, who delivered the news about the malignancy, said if he was ever going to have cancer in his life, mine was the kind he'd choose... which made hearing the diagnosis of TaG1 very easy.

And checking in on this board frequently makes it even easier.

I'm going for my second 6-mo. cystoscopy (in office) on Valentines's day :P First one was clear except for a little too much scar tissue forming, so I'm hopeful for the same result again.

Good luck to you!

TaG1 12/05
3 recurrences
BCG started 9/09

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14 years 4 months ago #3358 by amy
Replied by amy on topic a little confused,shocked and scared
Hi Stacey

I hope your surgery went well. How old are you? I just turned 27. I was diagnosed with a low grade papillary tumor three weeks after the birth of my third child. I shared all of the same emotions as you. Feel free to send me a PM if you want to talk. I hope you are doing well.

Alyssa

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14 years 4 months ago #3385 by staceyjani
Replied by staceyjani on topic a little confused,shocked and scared
Hi everyone I am back home and in great pain. I did elect to have the spinal block and am paying the price for it. my back hurts awfully bad. but there is no cancer,there was alot of inflamation going on and I got stints in there now and will have them removed on monday. The nurse said I am very lucky. it was tiny tumors he scraped off and after the report came back yesterday no cancer cells I felt very relieved. I had been getting lots of infections while being pregnant so I dont know if thats where the problem started but no further treatments nessesary except getting the stints out wich were put in to keep scar tissue from growing over the urethur tubes. head hurts from the spinal. I'd recomend anyone thats doing the turb to go to sleep. I thought it would be simple to get the spinal in like my other two times for c sections but the girl that did mine clearly was not having any luck. thankyou for those that helped me thru this scary time. I've had bladder infections all my life ,back in the 70's I'd be hospitalized for them even. my hubby came with me at the last min and left his work and handled jasmine all day. I saw lots of people getting the same thing done as me,I now know how common of a problem this is. Your all in my prayers and I had to just let you know how I made out in everything.
all the best.. Stacey

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14 years 4 months ago #3387 by Rosemary
Replied by Rosemary on topic a little confused,shocked and scared
Stacey,

I'm so glad that this is behind you and that the news is good.

I'm sorry that your back hurts and that you have a headache. I wonder if they had you sit up too soon? :-/ Also, I'm surprised that they did not also put you to sleep...

Anyway, hopefully this discomfort will pass soon.

I'm so glad for your good news.

Best regards,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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14 years 4 months ago #3390 by Rosie
Replied by Rosie on topic a little confused,shocked and scared
Stacey I am glad to hear your "tumors" were benign. Is it just a co-incidence that there seems to be a great number of new mothers having "tumors." I wonder if the pregnancy and birth process itself has anything to do with bladder problems. The first time I urinated blood was a week after my son was born. It took another 28 years before it occured again and before a "tumor" was diagnosed.

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14 years 4 months ago #3415 by staceyjani
Replied by staceyjani on topic a little confused,shocked and scared
thanks guys. yes actually this child birth thing has me wondering also. I started having pains during pregnancy. we got down to business finally after my daughter is now 6 months old and found the trouble. anyone with bladder problems I really give my heart out to them. just what I even went thru on monday and still today is very painful. but my mom often sais that sure seems odd that moms are getting more cysts and things like that these days. happy to be done with this surgical thing anyways. the spinal block is awfull my god I'd never do it again. wonder how long the headaches stay around.
thinking of u all.
Stacey

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