a little confused,shocked and scared

14 years 3 months ago #3312 by staceyjani
a little confused,shocked and scared was created by staceyjani
Hi I dont know where to exactly post but I am diagnosed with a bladder tumor. did a cystoscopy last monday,the dr said it's a medium size tumor,have surgery on monday to remove it. It's done thru the scope they tell me. sorry for my ignorance and I dontknow all the medical terms yet. I am a mother of 3 dont smoke and stay at home mom. nervous about what they find. does finding a tumor always mean cancer?,I wasnt clear on that with the dr ,he said to me this is treatable and is one of those things us dr's call a nuisance type of cancer yet he didnt call it cancer he sais we have to biopsy the tumor. we can remove it but chances of coming back again are high so we usually do the 3 month cystoscopy again for checkups sometimes chemo. I started to cry ofcource stammering about my babies at home and how I have to raise them . he said he would never lie to me about what he believes is going on here. so ofcource stacey being stacey sais,so are u really worried?? he smiles and sais NO,but we have to treat you and get that removed. you know thenI got brave again and said ok I can do this. funny thing is now the closer to monday we get the more phobic and net surfing on the problem I get wich is making me even more sick! The dr mentioned tumor looking flat yet bumpy so then ofcource obsession sets in about the shape size and it its the worst case scenerio. sorry venting feels good though. sort of shocked right now so excuse my panick attacks. any words of wisdom? just a friend looking to be friends that know about this stuff.

Stacey

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14 years 3 months ago #3313 by skypilot
Replied by skypilot on topic a little confused,shocked and scared
Try to relax the odds are it isnt that bad, It would be very rare that it is life threatnimg, For sure life changing. And it does suck but we all go on. Even if it were the very worst case you would a lot of years left to help your kids get older . Don

Hanging in there!

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14 years 3 months ago #3315 by Rosemary
Replied by Rosemary on topic a little confused,shocked and scared
Hi Stacey,

I think Skypilot has pretty much covered it all.  One thing that my Doctor warned me about after my initial diagnosis and before the stage and grading was, "Be careful about what you read on the internet.
You'll see a lot of worse case scenarios."  I think that your Doctor was being very reassuring with you. I think you should listen to him.

There is a page on the Bladder Cafe Home Page called "Questions" and you might find this helpful in talking with your doctor and preparing for your biopsy.

This is really the hardest time, after diagnosis and before the stage and grade .

The fact that you don't smoke is good.  Don't start now....

Good luck on Monday and please let us know how it turns out.

Best regards,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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14 years 3 months ago #3317 by wendy
Replied by wendy on topic a little confused,shocked and scared
I'm sorry to meet yet another young mother with a bladder cancer diagnosis. Please don't despair.

There are many types of bladder tumors ranging from non-threatening to life-threatening. Nothing can be determined without a biopsy and TUR (transurethral resection), and pathology. Then you'll know what you're dealing with. Until then, don't read everything about bladder cancer. It's confusing and scary even when you know the territory and have a definite diagnosis. Before that time all you have to do is stay sane till the results come back, and then you know what to look for. There are quite a few ways to deal with bladder cancer. My sister had no other treatment aside from tumor removal.

What you want to hear is that it's stage Ta, grade 1, like my sister had.

Take care of yourself,
Wendy

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14 years 3 months ago #3326 by Rosie
Replied by Rosie on topic a little confused,shocked and scared
->he said to me this is treatable and is one of those things us dr's call a nuisance type of cancer <-

Stacey, I know you are shocked and a bit traumatized by this unexpected find. My heart goes out to you. Let me reasure you though, doctors are 95% accurate in their site diagnosis during a cystscope as confirmed later by a pathology report from the biopsy at TURB. If he spoke the words "nuisance type" he most probably saw a low grade papillary growth. When I moved to Virginia from Texas, a tumor was seen during my last cystoscopy in Texas. A picture of the tumor was taken during the cystscopy in Texas and given to me. When I showed it to my new urologist in Virginia, he explained to me what inidcated it to be be a very low grade just by seeing the picture itself prior to his cystscopsy. It was confirmed as such once I had the tumor removed. My sister-in-law had a growth in her bladder. Pathology showed it to be benign - not cancer. Stay hopeful that the find is minor.

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14 years 3 months ago #3329 by staceyjani
Replied by staceyjani on topic a little confused,shocked and scared
thanks for all who replied and I really apreciate it. this is a nice place to share feelings. night before my surgery I feel all jittery,all nervous . does a person get to pick the kind of anestesia they want?

your all really a great support to me.

Stacey

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