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After biopsy

10 years 2 months ago #33142 by Patricia
That is soooo great...i told you he was a great man and a great urologist/surgeon. He is so caring. Look at it this way you're at the #1 Urology hospital with #1 pathologists and a #1 uro...what more could you ask for. At least you'll know without a doubt what you have.
Dr.Schoenberg is so very generous with his time and advise. He helped me greatly when i was first diagnosed. I simply was following my local internists instructions and went to the uro he recommended and had never even heard of bladder cancer. I picked up Dr. Schoenbergs book and found him on his web site and he wrote me back the next day and set up a phone appt. with me. He actually gave me the names of the top uros all over the country...he didn't need to do that. I just think the world of him as a person and a surgeon.
pat

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10 years 2 months ago #33141 by Akhnaten
Now I have to back out of the general urologist's practice and extricate my records...

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10 years 2 months ago #33140 by Akhnaten
Well, you were right about Schoenberg (do they read here?). He answered my email very promptly, and he appears to agree with you that I've got time to think. So I'm in with a cystoscopy and I'm guessing probably re-TURB next week. Of course, the re-TURB is kind of the worrying part in case it gets upgraded or something. Or, benign papillomas look, as I understand it, mostly like normal urothelium, so maybe I've been over-graded and it's just a weird outcropping of tissue---if wishes were horses and all that.

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10 years 2 months ago #33139 by Akhnaten
That's good advice.

I had no idea that Castle Connolly existed. I may not even (thank God/God willing) have Real True Cancer, but this has opened up worlds of things I didn't know even existed before. Well, I did, but not so immediately.

A sample of the nearer urologists all find that they mostly don't actually do this kind of surgery on a regular basis. Let's just say that my urologist is not on the list. The only one CC has rated near me is Schoenberg. Well, I've emailed him, and I guess I should call Hopkins tomorrow or something. My insurer seems to list Hopkins as a participating hospital and all.

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10 years 2 months ago #33138 by Patricia
I know but don't compromise on your care. I took a plane to NYC for my second opinion and re-turb and drove 4 l/2 hrs when i had my cystectomy and diversion done. I'm 8 l/2 yrs out and its the best drive and plane trip i've ever made.
pat

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10 years 2 months ago #33137 by Akhnaten
Hunh. Well, if he has space than Schoenberg it is, long drive notwithstanding. It's always a pain to get a co-driver to drive me back. GWU had the good sense to be on the DC Metro so I could have taken transit.

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