YOu might want to repost over in newly diagnosed or Invasive so more will see the post. Many of the men here have a neobladder and can help Dad along. You are certainly in a state with top bladder cancer specialists especially in NYC. You want to make sure your surgeon does a lot of these neo's. The top specialists do up to 200 a year believe it or not.
How old is Dad? Something to consider when having this surgery as compliance is very important with the diversion you choose.
my father was recently diagnosed..CA into the muscle of bladder
experiences hematuria and went for a ct scan
ct scan showed "shadow"
the report had "neoplasm" all over it and the BASIC UROLOGIST does a diagnostic cysto in the office to confirm that he had a "polyp" on his bladder and needed a TURBT.
after not liking thelackadaisical attitude this guy had, he finally decides to go with a BLADDER CANCER SPECIALIST (thank God he listened to his RN daughter) and learns that the diagnostic cysto was useless, the CTscan REPORT showed clearly that there was a cancer. not just a "polyp".
(perhaps the basic urologist just wanted to make extra $$ that day)
he goes for the TURBT with the specialist, results are that it yes indeed was cancer and the path report confirm it is muscle invasive. (T2?)
treatment varies..but our new DR who is AGGRESIVE is going to treat my father with WHAT WILL KEEP HIM ALIVE LONGER. he stated he will THROW HIS CANCER IN THE GARBAGE.
i happen to like that approach. he is scheduled for a bladder reconstruction/replacement in 2 weeks.
many dr's can treat an illness, disorder, cancer etc..and not do anything actually "wrong" , but are they acting on whats easiest for THEM or the PATIENT.
how old is this chemo/radiation dr? is he stuck in the old ways of treatment?
all suggestions welcomed as i will help my father adapt to this new lifestyle with an upcoming NEO BLADDER. THANKS!!!!
Thank you, George. I don't know what he's thinking. He says the doctor told him that this route is close to 90% effective. I personally think his doctor is using him as a guinea pig or he's an idiot! My Dad will probably still end up having to have surgery. I don't see why he's putting his body through hell only to come out the other end at the same place he was before except now his body will be worn down and possibly damaged from the radiation and chemo. If it were me I'd want the surgery. If it has not spread, that would be the end of it, life would continue.
I did find out that he has Medicare part A & B along with supplemental insurance. I've already told him that I hope I won't have to say "I told you so" in a few months. LOL If I do end up in that situation I'm going to try and get him to a better doctor. He probably still won't listen to me but all I can do is try. I couldn't live with myself if I just sat back and didn't try to get him the help he needs.
I think we are related. We both have the same father. Stubborn and still thinking we are 10 years old! I will say a prayer. But why would chemicals and Atomic particles being blasted into you become the preferred treatment when a skilled surgeon can REMOVE it.
Just for the record... Surgery has a relativly finite timeline for recovery. What is the long term affect caused by chemo and radiation?
Good Luck with your dad. I hope he does OK
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.
08/08/08...RC neo bladder
New Man! [/size]