37 is too young. Look at the waiting rooms!!!!

14 years 5 months ago #3065 by Simon
Hello I also am new to the BC scene and absolutely relieved to have found this web site. I only wish I would have come across it sooner.

Reading Rooster's message sounded all to familiar.

I also am 37 and live near Vancouver B.C. I am a male, (5'11" 185.), married for the second time, and have two boys 11 and 5. I come from a very close family on both sides and have a tight group of friends. I play hockey year round at least once a week and work in construction mngmnt. I have been diagnosed with BC. Yes, it is much too young.

I noticed blood in my urine. The first time it was almost like a tomato juice colour and then subsided to a tea colour before really looking mostly clear. This lasted about 48 hrs. I had cramping at times intense but I don't recall both symptoms occuring over the same time period.

I gave a urine sample and was sent for an ultra sound of my abdomen.
I new something was wrong when the tech asked me how old I was and if I had any kids. She asked me if I could feel anything while examining my bladder.

I was sent for a cysto. At my consult, everyone in the waiting room was as old as my parents or older. The doctor said he saw a 4cm tumor but couldn't remove it due to it being located beside one of my kidney ducts. He was concerned about scarring.

I was sent to a urologist. At my consult, everyone in the waiting room was as old as my parents or older. He informed me that I do have cancer.

I had surgery by laser Dec 27.
He removed a tumor "The size of a mandarin orange." He did believe that it was superficial and that he removed all of it.

I have another appointment Jan 11.
I am really nervous. No, I'm scared.

I am so thankful that I have found you all. So many of my questions about recovery and treatments have already been answered. I will be much more prepared when asking my Dr questions.

Can any of you perhaps shed some light on my stage and degree?

Thank you for listening...
I really needed that.

Simon.

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14 years 5 months ago #3070 by Rosemary
Replied by Rosemary on topic 37 is too young. Look at the waiting rooms!!!!
Simon,

I personally have not yet heard of laser surgery for BC. I am fairly new here (diagnosed with BC Jan 06) and this idea is a first for me.

Perhaps someone else has more information about laser.

I'm just wondering how the tumour can be staged and graded when it is zapped? :-?

If I were you, I would google around for information on solitary/single tumor as opposed to multiple tumors in the bladder. See what you find. It MIGHT make you feel a little better.

My doctor thought I was young for BC (I'm 54). ..... Try being female too.

I hope you get back with us, and maybe someone here can jump in with more info on laser surgery for BC.

Good luck,
Ro

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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14 years 5 months ago #3072 by rooster69
Replied by rooster69 on topic 37 is too young. Look at the waiting rooms!!!!
My-computer-key-board-won"t
-space-so-I-have-to-use-this-key--- ;D-thank-you-all-to-answered-I-had-the-cystoscopy-yesterday-and-the-urologist-checked-my-urine-again.--I-had-three-times-more-blood-in--urine-than-two-weeks-ago.--The-urologist-said-he-found-no-tumors-but-saw-a-"rash"-in-my-bladder.--What-this-is-I-don't-know.--Should-I-get-second-opinion-or-are-rashes-in-the-bladder-common.--I-was-thankful-he-found-no-tumors-and-pray-for-all-of-you.

Thank-you-all-again

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14 years 5 months ago #3073 by Rosemary
Replied by Rosemary on topic 37 is too young. Look at the waiting rooms!!!!
Rooster,

I am glad to hear that there were no tumors.

I have not heard of a rash before. :-?

What is the next move?

Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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14 years 5 months ago #3075 by rooster69
Replied by rooster69 on topic 37 is too young. Look at the waiting rooms!!!!
I-am-supposed-to-return-to-him-on-the-16th-of-january-so-he-can-check-my-urine-again,--and-check-on-the-"rash".--I-have-never-heard-anyone-say-"I-have-a-rash-in-my-bladder"
If-I-still-have-the-rash-and-blood-in-my-urine-I-will-return-to-every-three-months-to-check-for-blood-and-on-the-rash.
I-wasn't-able-to-view-the-procedure-so-I-don't-know-what-it-looked-like-(the-rash),but-he-said-it-was-at-the-base-of-my-bladder.--Iwasn't-able-to-get-out-of-the-urologist-what-would-cause-the-rash,or-what-it-was.
I-don't-think-I-want-to-go-back--I-think-that-if-something-were-really-wrong-thect-scan-would-have-picked-up-on-it.
Any-ideas-on-this?
Would-I-offend-the-dr-if-I-got-a-second-opinion,-or-do-I-need-one???
I-can't-even-find-anything-on-the-net-regarding-a-rash-in-the-bladder.
Thank-you-for-all-your-help-even-just-listening-I-would-feel-retarded-telling-my-friends-I-have-a-rash-in-my-bladder
:-[

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14 years 5 months ago #3077 by Rosemary
Replied by Rosemary on topic 37 is too young. Look at the waiting rooms!!!!
Okay,

I googled rash and bladder and can't get a hit. :-X

I even googled psoriasis and bladder and didn't get a hit.

My only question is this...

IS THE DOCTOR PLANNING TO BIOPSY THE SITE? IF HE DOESN'T BIOPSY THE SITE, THEN I THINK HE NEEDS TO PROVIDE YOU WITH THE PROPER NAME FOR WHAT IS IN YOUR BLADDER!

What this brings to my mind is when my sister saw the photos of my bladder cancer, she said, "That looks like psoriasis." (We both have psoriasis) There were obvious tumors also.

The doc just gave her a glare. >:(

Anyway, I'm not saying that you have bladder cancer. But, I think you deserve a name for whatever it is that you have. If it doesn't have a name, I think I would insist on a biopsy or a 2nd opinion.

Blood in the urine has an organic cause. Saying you have a rash just doesn't cut it. Not to me anyway.

Good luck and please keep us posted.
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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