The map of the journey--Andy

11 years 6 months ago #29964 by mmc
Replied by mmc on topic The map of the journey--Andy
Andy,

So glad you got to UM. I'll bet you are too!

Good luck on the restaging. The wait will be a pain but I certainly wish you (and your wife) all the best.

This is really tough on our spouses also but, like mine, it sounds like your's is there with you every step of the way. That really makes a difference when someone's got your back.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
The topic has been locked.
11 years 6 months ago #29965 by Andy
Replied by Andy on topic The map of the journey--Andy
Thanks Mike -

Yup - I've got a great wife. Also a cancer survivor, it's been a rough couple of years. We figure we'll write a book "Cancer from Both Sides". At least we're going to volunteer with local support groups once everyting settles down. We've had some tough times but still are very fortunate in the big picture. Life is good! I appreciate your help and I'll post again when there's some new info.

Take care - Andy
The topic has been locked.
11 years 6 months ago #30034 by Andy
Replied by Andy on topic The map of the journey--Andy
An update from my re-staging surgery at UM. Cancer is back in the bladder, possibly in the protate also. We are so glad we went ot UM to have this procedure, I'm sure my outcome will be much better. I go back on Friday to get the path results and discuss the scheduling of the RC. My doc said if I was 75 he'd try the BCG, but being 52 the bladder removal is the way to go. Hopefully the path results will be positive so I won't need to do a course of chemo first. Oh well, anything to take of those nasty little mutant cells. Thanks for everyone's support and kind words.

Andy in Michigan
The topic has been locked.
11 years 6 months ago #30036 by mmc
Replied by mmc on topic The map of the journey--Andy
Andy,

So glad that you went to UM!!!!!

Sorry to hear of the situation but it sure is better knowing the true situation and the right answer!

Be sure to circle back to your original uro so she knows not to say that part about "surprised even considering RC" to other patients. She should refer them to UM!

Hopefully, others who read this will realize that we're not trying to be pains in the butt when we HIGHLY recommend getting to a major bladder cancer!

This very well could be the decision that saved your life!

Keep us informed and ask any all questions. There is a lot of information here about the diversions, the surgery, and recovery. You might want to browse through that for a while.

We are here for you Andy!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
The topic has been locked.
11 years 6 months ago #30079 by GKLINE
Replied by GKLINE on topic The map of the journey--Andy
Andy
Mike is SOOOOO Correct! I have just gotten used to the MAP that Mike put out for us. He should send this to every uro DR. in the country. It makes the process soo understandable.

Good Luck with the procedure. You ARE in the right hands now. Keep us in the loop. As you already know, we are here for you.

We'll be waiting for any news


George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The topic has been locked.
11 years 6 months ago #30094 by rudyskier
Replied by rudyskier on topic The map of the journey--Andy
Andy, I just started following your thread. I was in a somewhat similar situation (decision wise) as you last October, my URO was a great guy and I liked him a lot. But, Mike and others suggested seeing a good specialist. I did and I'm glad I spent the time researching it. I decided on the RC and it worked out great for me. My wife and I had many discussions about the course of action beforehand.

I wish you the best and believe your in good hands now.

Rudy
The topic has been locked.
Moderators: Cynthiaeddieksara.anne