Dear Doctor.....

14 years 8 months ago #26854 by Melodie
Replied by Melodie on topic Dear Doctor.....
Mike,

Great Idea! Now we just need to find a way to get many of them to slow down long enough to read it. :unsure: I think my surgeon was awesome but I don't think he even read the letter I sent to him early on...prior to my RC. When he went in and did my second TURB, and I was still under anthesia, he got hit by my 86 year old mother-in-law who had the questions in hand. He answered them as she read them off to him. He wasn't too happy about being slowed down like that but she did get most of the questions answered. :S

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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14 years 8 months ago #26838 by Flamenco.
Replied by Flamenco. on topic Dear Doctor.....
Mike,
I think your letter says it all, and it would be a great
idea to put it somewhere on the site permanently.

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14 years 8 months ago #26835 by Patricia
Replied by Patricia on topic Dear Doctor.....
I suppose my letter to Dear Knucklehead wouldn't quite cut it huh?:S
Pat

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14 years 8 months ago #26830 by sara.anne
Replied by sara.anne on topic Dear Doctor.....
Mike, I think this should be inscribed in marble at the entrace to our web site. Please be sure you have carefully saved it so that it can be used EVERY TIME SOMEONE NEW COMES TO OUR SITE.

Thank you for saying it so well

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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14 years 8 months ago #26828 by Nix
Replied by Nix on topic Dear Doctor.....
Amen! Well written................







Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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14 years 8 months ago - 14 years 8 months ago #26819 by mmc
Dear Doctor..... was created by mmc
The following are just some random thoughts I had about things to communicate to a local urologist. The thoughts are based on my experience and also the experiences I've read from others on this site. In reality, my local urologist highly recommended that I get to a major bladder cancer center and recommended a couple as soon as I had positive cytologies two years after my initial CIS diagnosis and treatment.

Based on what I've read in posts here in the forum, I get the sense that many people are concerned with insulting their urologist and in some cases urologists may be trying convince patients that they know better than the major bladder cancer centers.

In any case, that line of thought led me to these random thoughts about a hypothetical letter (or conversation) with a local urologist after a diagnosis of bladder cancer.

Mike


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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