How it begins...?

12 years 1 month ago #24853 by britt
How it begins...? was created by britt
In Oct of 07 I had my first indoctrinazation to the World of bladdwe cancer. The first time I happend to look in the toilet and saw this dark mass. There was no discomfort nor did I feel it come out. My urine was red tinted for a couple days and then all was normal. A month later I felt something solid pass out of me. No painful, just odd. I passed about 7 clots at that time. This time the red tint was gone the same evening. I pui it off because I didnt want deal with it as it stopped. My wife brought it up to my podiatrist. She got all worred and put in a uro consult.
My question was about the clots. From all Ive found it was a sign of the cancer they later found. What is it that causes the clots? Is the cancer causing internal bleeding? At first I chalked it up to stones as I have gout attacks from high UA levels.
Is it normal for a person to only having couple of instances? We wouldnt it be a recurring problem?

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12 years 1 month ago #24863 by Patricia
Replied by Patricia on topic How it begins...?
Its a tricky little monster..sometimes its just microscopic that you can't even see......sometimes it appears as very dark tea colored urine that you attribute to something you've eaten.......you may only have one incidence of passing blood clots or several.........it takes on many forms. Its your bodys little warning light that should alert you to a problem but often goes ignored by patient and uro alike.
Pat

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12 years 1 month ago #24865 by britt
Replied by britt on topic How it begins...?
Thanks Pat. I was just curious as to why if it was caused be the cancer that it didnt happen more often.

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12 years 1 month ago #24868 by sara.anne
Replied by sara.anne on topic How it begins...?
Britt, some have some blood, some never have any (me, for example.) Some have it once..some often. My father had a very small amount ONCE. Luckily, he went to the doctor. In his case it was kidney cancer.

That is why you see the advice that if anyone EVER sees blood they get to a urologist.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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12 years 1 month ago #24870 by Alan
Replied by Alan on topic How it begins...?
Britt,

I passed blood clots just once and IMMEDIATELY called my family doc. He took a urine sample and treated me for an infection. After a week a urine test still showed microscopic blood so he sent me to a URO. Sometimes it's stone, sometimes there are unexplained never diagnosed bleeding. For me it was a small tumor. The consensus was (I was taking heavy doses of aleve/not ovredoses for a little arthritis) the aleve helped cause the bleeding. That kind of drug can cause it anywhere in the body. URO ordred a CT scan-pathologist missed it (.5 CM) and said no tumors visisble. My URO looked at the film also in the 1/2 hour to dress & drive this office. He saw a shadow-he was going to scope me either way and found it!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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12 years 1 month ago #24875 by mmc
Replied by mmc on topic How it begins...?
My first clues were UTIs. Then I noticed some blood but no clots. That's when I had CIS back in 2006.

In September of last year, I had some blood clots. It was shortly after having a cysto that looked all clear. Called my Uro and he brought me in the next day for another cysto. It also looked clear but he did an NMP and FISH test and those both showed the cancer had returned. The clots would come every couple of days or a week but when they looked in nothing looked out of the ordinary.

It can be strange. Now that you've had a tumor, any time you have clots appearing you should mention it to your uro.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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