My mom

13 years 1 week ago #17630 by patticake1957
My mom was created by patticake1957
Hello, My name is Rene and I am writing for my mom. She was diagnosed with bladder cancer insitu two years ago. It was high grade. She had the BCG treatments with good results. She as had periodic cystoscopies and in March noticed some blood in the urine. The March cystoscope was negative. She continued to have hematuria and then two weeks ago had major hematuria. She was scoped on May 29 and one polop (sp) was found. She had the surgery to remove it yesterday and I got the path report today. I am a lab tech at the local hospital so the pathologist asked the doc if I could have it. The results were "high grade invasive urothelial carcinoma". The tumor invades up to the muscularis propria. There is no definitive invasion into the muscularis propria in this biopsy specimen. It has not been graded as I have seen here with the "T". I guess when I speak with the doctor next week we will discuss that. Mom is 74 but in good health otherwise. Right now my heart says to get her to Duke University Med Ctr, which is 40 miles away and have someone yank out the bladder. I need some advice from all of you. I am so thankful to have found you all. Thanks in advance.

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13 years 1 week ago #17631 by momof4
Replied by momof4 on topic My mom
Hi Rene,

I am in NC too...there are great hospitals here...Duke is great, Wake Forest Baptist (where my husband goes), and UNC Chappel Hill...I am sure that the others who are also in NC and will chime in too. Second opinions are ALWAYS best...

I wish you and your mom well,
Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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13 years 1 week ago #17635 by Patricia
Replied by Patricia on topic My mom
patti..i would certainly go for that second opinion...you want to make sure the pathology is not understaged. CIS high grade needs to be watched very closely. Its only into the lamina propria is that right? At any rate there are some very good cancer centers near you...UNC and Dr. Pruthi...www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/Dr-Raj-Pruthi-MD-B757B287.cfm
Wake Forest in Winston Salem....www1.wfubmc.edu/oprd/physdetail.htm?PhysicianID=170
I only found a couple at Duke who are not into prostate cancers ..Dr. Walther
www.dukehealth.org/physicians/8645D9265646C0FD85256DFD006A92CC
And Dr. WEbster.......www.dukehealth.org/physicians/D2422424048921FD85256DFD006A944D
Hope perusing these sites will help...........Pat

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13 years 1 week ago #17638 by tate
Replied by tate on topic My mom
Hey Rene, I am here in NC too...I have not switched to a teaching hospital yet. but have friends that BC and they see a group at wake forest baptist hosp. They are very happy there. I think there are others in the forum that are at UNC Chaapel Hill. When I am finished with this round of BCG and if I have a reoccurance I will check out Wake. Duke is good also...we are very lucky in NC to have so many choices...but I agree with Karen about getting a second opinion.
I pray and wish good luck for you and your mother.
-Tate

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13 years 1 week ago #17642 by patticake1957
Replied by patticake1957 on topic My mom
Thank you all for your replies. I am so thankful for the concern that has been sent my way. We will go for a second opinion.

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13 years 1 week ago #17690 by Rosemary
Replied by Rosemary on topic My mom
Patti,

I was very, very pleased with the Urological Surgeon, Dr. Raj Pruthi, and his staff at UNC Hospital. I saw Dr. Pruthi for my second opinion and the whole process was a very positive experience.

Good luck,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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