Thanks Rosemary, I certainly will bring paper with me and I'll write down everything I hear, I've also learned from this website to ask for a copy of the biopsy report which I will do!! Have you any other suggestions or questions I should ask?
I will also defo ask about getting a 2nd opinion, the fact that 40-60% of biopsy's are under-graded scares the hell out of me Not sure how many options we'll have, we're in Ireland so the options are pretty limited compared to the US, maybe getting an opinion from a doc over there could be an option?? Have you ever heard of this?
On another point, how were you after your 1st Turb? My dad is normally a really active man, we can never get him to relax and sit still but he is very tired at the moment, is very sore and has no energy, is this normal, his Turb was a week ago today?
Well we're keeping our fingers crossed that we get good news this week, seeing that you have been tumour free from 2.5 years keeps my hopes up so thank you for your comment and support xx
The best advice that I can give about going to the appointment is to take a little notebook with you and write down notes on what you hear from the Doctor. Don't count on your memory at this time to remember important details. Especially write down the Stage/Grade of the tumor, and the treatment options. You might want to think about broaching the subject of a second opinion at this point. Keep in mind, that most of us (or so it seems) who have been there would probably recommend a 2nd opinion from one of the larger hospitals (I like a teaching hospital) that may be close to your area. You might broach the subject with your Doctor at this time.
A second opinion is a given with any bladder cancer diagnosis.
Take care and keep us posted.
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006