Yes, you are right. It takes every bit of energy to make it through the days sometimes.
I know that your cancer is not as serious ultimately, but it still is unique to you and I am sure it is throwing you for a loop.
Stay strong and you will make it just fine. There is a lot ahead for you, but stay steadfast and make the most out of this situation. You will definitely find out who is true blue in your life, and meet a lot of people you wouldn't have otherwise.
Attitude is a lot when you are dealing with this. True strength is staying positive when there is mostly negative around you. You seem to be open to suggestions and willing to discuss this openly. That is very important as well.
You are in my thoughts,
Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.
Life isn't about how to survive the storm, but how to dance in the rain.
Tahoemom, It is hard to not think about what is paramount in your life. My husband has been dealing with Bladder Cancer since 2001 and each time he has a cysto or TURBT and then has to wait for the results it's a struggle not to dwell on what ifs.
We had to work out a way to live with uncertainty. But we primarily use distraction. I spend a lot of time on the computer and play games. My husband also plays a lot of games on his Nintendo DS.
It is difficult to realize that you probably will be living with Bladder Cancer for years. This will call upon all your coping skills.
Perhaps the best thing is to take the time and think about the unthinkable. Once you have done that it may not break through so often. Best to you. Julie
I have been dealing with bladder cancer just since January and know the emotions you are going through. When I first discovered blood in my urine, I was a total zombie. I knew it was cancer immediately and my reading on the internet confirmed my fears. I saw the doctor within the week and he found my tumors. For me, the very worst was the waiting. I could hardly get out of my recliner. I did not want to eat and I seemed to sleep lots which is hard for me to imagine now. I have always been very active, walking at least 2 miles everyday, doing most of the yard work on our 2 1/2 acres which is steep and going all the time even though I am "retired".
I decided that I had to have some control of the situation and that has improved me mentally so much. I read everything I can get my hands on, books and on the internet. This site is great!! Writing about it helps too. I am doing some of the alternative stuff like taking supplements, eating much healthier, keeping up with my exercise although I don't have the energy I did have, and doing some of the mind imaging.
Now I really don't dwell on it. Life goes on and I have decided that no matter how much longer I have to live, I want to live having fun and living a half way normal life. If I let this cancer control me, it has won and I am not going to let that happen. None of us know the future anyway. I maybe killed tomorrow in an auto accident but I want to enjoy life.
I will be finishing my BCG treatments in 2 weeks and then I go for my cysto. Of course, with this cancer, I don't think we are ever "cured".
Mom4, my heart is with you. I, too, am in NC.