Immunotherapy

2 years 11 months ago #57941 by Jack R
Replied by Jack R on topic Immunotherapy
lotech,

Great to hear that the immunotherapy is working !
Sorry to hear about the kidney, but the good news is you only need one. I lost one years ago, and when the bladder cancer hit there was concern about my making it through chemo with just one kidney. I made it.

When cancer showed up in my one kidney, it became the most important thing. The kidney cancer seems to be gone, but the bladder cancer remains. I don't want to be without any kidneys; not looking forward dialysis.

Hang in there - it seems a rough path for you, but it is good to hear that you are still clear of the bladder cancer. Keep up the good work, praying for you and yours.

Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
The following user(s) said Thank You: lotech35

Please Log in or Create an account to join the conversation.

2 years 11 months ago #57933 by Alan
Replied by Alan on topic Immunotherapy
Thanks for the update. Sounds like you are getting things under control.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: lotech35

Please Log in or Create an account to join the conversation.

2 years 11 months ago - 2 years 11 months ago #57924 by lotech35
Replied by lotech35 on topic Immunotherapy
Im back! could not save ureteur, so for neph bag removal I had to lose a kidney. sounds bad but the external bag was an issue to me. I hated it. might regret that in the future but for now its great! still getting immunotherapy and no sign of disease!!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
The following user(s) said Thank You: Jack R

Please Log in or Create an account to join the conversation.

3 years 2 months ago #57438 by lotech35
Replied by lotech35 on topic Immunotherapy
Alan

One more surgery my friend to try and fix a ureteur. next month! so much has happend All of you on this site have inspired me and kept me going! Know that I think of you often!! and Thank You!!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

Please Log in or Create an account to join the conversation.

3 years 2 months ago #57433 by Alan
Replied by Alan on topic Immunotherapy
LoTech,

Don't be a stranger. You inspire everyone. Glad you are making progress!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
The following user(s) said Thank You: lotech35

Please Log in or Create an account to join the conversation.

3 years 2 months ago #57418 by pete172
Replied by pete172 on topic Immunotherapy
Iotech35, always go to hear from you, and happy you are doing well. I'm in 4 months and 8 infusions. my marker numbers are going down, and pet showing less. I still have some fatigue and mild nausea, but thats easy to deal with. we are blessed. stay well. God Bless.
The following user(s) said Thank You: lotech35

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne