CALL FOR VOLUNTEERS!!

7 years 3 months ago #52605 by CatherineH
Replied by CatherineH on topic CALL FOR VOLUNTEERS!!
Hi Sara Anne... I just emailed Cynthia asking to be added to the new site. I got an email from the new forum and could read posts but couldn't log in. It looks really nice.

Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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7 years 3 months ago #52604 by sara.anne
Replied by sara.anne on topic CALL FOR VOLUNTEERS!!
Thanks, Jack.

Sent some info to you via your "email of record" here....a comcast one.
If that isn't correct, please email Cynthia This email address is being protected from spambots. You need JavaScript enabled to view it.
and correct it for me

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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7 years 3 months ago #52602 by Jack R
Replied by Jack R on topic CALL FOR VOLUNTEERS!!
Sara Anne,

I am feeling guilty not offering to volunteer to help test software.
I just finished a week in the hospital and have at least 3 weeks of half days at infusion therapy ahead.

I can't hold a schedule now, but is any less formal way to assist ? An alternate site to "play with" or such ?

Thanks to those who maintain this site; we appreciate yuor efforts.

Best
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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7 years 3 months ago #52574 by sara.anne
CALL FOR VOLUNTEERS!! was created by sara.anne
After MONTHS of hard work, particularly by Cynthia and Ed, our new web site is in the early testing stage and should be ready for more wide-spread testing in a week or so. I think it looks GORGEOUS, but then, of course, I am biased!

We will be needing 10 volunteers willing to "play" with and test all aspects and get the bugs out of the site before it goes to prime time. If you would like to help us with this, please send your contact information (email and telephone number) to Cynthia:

This email address is being protected from spambots. You need JavaScript enabled to view it.

and we will contact you to give you your assignments.

Please be assured that we will NOT make your contact information public in any way.

Thanks for your interest!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: Sean T

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