Hello, Lisa!
As you may have noticed, your post was given its own "thread." The one you originally posted to was 10 years old ....which indicates how rare your type of bladder cancer is.
It is wonderful that surgery seems to have been successful! You didn't mention where you are being treated, but if you aren't being seen at a major cancer location it might be worth getting a second opinion at one. They are more familiar with the very latest research and treatments as well as possible clinical trials.
Let us know where you are located and someone may have a suggestion for you.
Keep in mind that you are doing great!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
