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Hi, I'm looking for information from people that have had permanent urine bags

3 days 11 minutes ago - 3 days 10 minutes ago #58128 by Alan

Welcome. We are always sorry for the reason to be here. I have not had a cystectomy so I will not be a lot of help here but, I wanted to let you know your post is being seen and hopefully some with experience will chime in. I know a few that have the urostomy bag and lead very productive and enjoyable lives. While it will take some time I believe your Step Mom will conquer any barriers albeit it has to be more difficult being blind.

Pat yourself on the back being a caregiver! It is a very important piece of cancer. Keep posting as you go.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 days 16 hours ago #58124 by hucklemento
My stepmom was recently diagnosed with bladder cancer and she has decided not to do chemo. Because her cancer is 100% confined to her bladder, they can remove it, along with other lady parts, but she will have to have a urine bag.

The complication is that she is blind. She's about 70 now. She is terrified about what the bag will mean, as she pretty much lives for walking about 2-3 miles a day, and she's worried about getting all the supplies, what to do if she gets urine all over herself and other things like that.

If anyone has any information they could share, tips, how it is to live with one, anything about exercise-related issues, or just really anything would be great.

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