If ueter is also removed...where is new 'port' located on body?
Is there a 'permanent' tube (For lack of a better word) thru new opening that catheter tube goes into? Trying to get a real image of this new method of relieving urine....
Feedback please on length of hospitalization...am sure it varies. Am in a panic regarding costs. No reserves...only money that comes in is Social Security. Health insurance is United Healthcare/Optum Advantage.
Thank you to all who participate and are helping shed light.....
I had a RC and got a Indiana pouche made from colon and small intestine.
My operation ran into complications so I spent a few months in the hospital. I believe you can be out in less time if all goes well.
you will get a catheter for your new pouche for a month so it can heal. An ostomy bag will collect urine for that time. you wont need one for your colon because that will function after
a few days. Now after the operation you will have drainage bags attached to your body called jackson pratts, they help drain excess fluid from your body. its a very complicated surgery mine took 12 hrs. I use a catheter in my lower right abdomen to drain urine from my pouche 4 to 5 times a day.
I chose the indiana pouche for continence, no urine comes out unless I put a catheter in. For me it works out great. Hope this helps.
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
The link below, to the National Institutes of Health (NIH), offers a good overall description of what is involved in removing the bladder and the types of urinary diversions.
This information is good background and can help form additional questions. You are welcome to ask questions here, but understand that we are bladder cancer patients, not doctors - so answers are from a patient point of view and experience.
You will ALWAYS want to talk to your care team about ANY concerns or questions you may have. No questions are off-limits. Keep a list of questions, and expect answers that apply to you. Ask LOTS of questions.
The answer to #5 is that Bowel Function is expected to return to normal. But don't just accept an answer off the internet, add that to the list to discuss at your next appointment, along with how to choose which type of urinary diversion.
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
1. What is used to replace bladder (mine needs to be removed)
2. Where are catheter and 'bags' on the body?
3. Approx how long in hospital?
4. How long (approx.) Did it take you to adjust to catheter.
5. If intestine used to create new bladder....was catheter implemented for stool? If so...how long did you need to wear this one?
6. Approx how long did it take you to feel adjusted?
THANK YOU FOR ANY SUPPORT...ADVICE...FEEDBACK
I had 10 cm tumor removed 10/1...diagnosis on 10/5....so this is new and scarry.