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Waiting for a diagnosis....

3 years 10 months ago #50112 by Jljrn
I know this in an old thread but I really wish the original posters would " keep us posted" as they say they will. Many people in their same situations are looking for reassurance that things worked out OK and it'd be nice to read so.

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5 years 10 months ago #45545 by samith
You must keep in mind that there are many things that can cause blood in the urine.

You have been sent on the right path, cystoscopy is the best way to see whats going on.

I only wish they would make it sooner so that you didn't have to wait so long to get the results.

Smile PlzZZzzz…(Usman Malik)…!!!

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7 years 2 months ago #42508 by upnorth
That's what we are here for. Most people are afraid to talk to friends and relatives until they know for sure. Then they have to sit and worry with out any support. That is not only sad, but a very unhealthy way to deal with the stress.

Hang in there we are routing for you.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 2 months ago #42507 by FishinOnTheFly
Dear UpNorth,
Thank you for your kind words. I'm grateful for this site as it allows me to write and relieve some of the anxiety. After I discussed what the doc said with my husband and mom, I choose to talk about it as little as possible as I don't want to make it a bigger issue than need be expecially if it turns out to be nothing (we hope).

I'll keep you all posted!

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7 years 2 months ago #42506 by FishinOnTheFly
Dear Catherine,
Thank you for your thoughtful response and support. Waiting is difficult. I'm trying to keep busy and not think about it too much...it is almost easy in one way as I haven't had any symptoms for a month.

I had a partial hystorectomy several years ago so I know the blood didn't come from that "department". Thankfully, I am seeing a top-notch urologist for my cystocopy...we'll hope he finds nothing.

I think what is kind of a shock to me is that I never would have suspected anything to be wrong. I thought I was just passing very small kidney stones....doc isn't so convinced of this however. What I'm confused about is how can there be episodes of blood and clots a day or two, then nothing. I wished I would have been able to focus and ask my doc more questions at the time, but I just couldn't think straight!

Thanks again for listening and writing. It's very helpful!

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7 years 2 months ago #42503 by upnorth
Passing blood or blood clots is always scary. I had passed blood twice before I took a sample into the Ready Care. They sent me to a urologist to have a cystoscope done, that is where the tumor was first spotted. After I got home I started to pee out the clots, lots of them. This scared the living day-lights out of me.

I made a panicky call to my Urologist, who calmed me down and explained that when the scope went in it broke up the blood that was stuck in my bladder and allowed it to be voided during urination. Even though it was a small amount it caused BIG concern for me. He apologized for not for warning me ahead of time. (He really felt bad about this)

But you must keep in mind that there are many things that can cause blood in the urine. You have been sent on the right path, cystoscopy is the best way to see whats going on. I only wish they would make it sooner so that you didn't have to wait so long to get the results.

If they do find a tumor don't panic yet, most are not cancerous. It has to be sent to a pathologist to be looked at and diagnosed as cancerous or not. So until then you are supposed to remain calm, cool, and collected. (Good luck with that one)

We are here to help with the waiting process too, so feel free to ask any questions, or if you just need a friend.

We Hate the Wait!

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)
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