Home › Forums › All Categories › Newly Diagnosed, New To The Forum › wonder what percentage of people with my diagnosis get to keep their bladder?

  • Newly Diagnosed, New To The Forum

    wonder what percentage of people with my diagnosis get to keep their bladder?

    Posted by Lorraineanne on October 28, 2020 at 4:09 am

    Start of Discussion
    0 of 0 replies June 2018
    Now

    I have just been diagnosed with non-invasive, high grade, Toa, papillary urothelial carcinoma, started BCg last week, will do 6 weeks and likely 6 more weeks

    Just wondering how many people with my similar diagnosis get to keep their bladders?

    8/20 tumor found, 2 TURB with stent, tumor resected from bladder, another portion lasered from ureter, Toa,papillary urothelial carcinoma, non-invasive, high grade, BCG began Oct 22,2020
    sara.anne replied 4 years, 4 months ago 3 Members · 2 Replies
  • 2 Replies
  • sara.anne's avatar

    sara.anne

    Member
    October 29, 2020 at 1:21 am

    There are just so many uncertainties, and, as Alan has said, we are all individuals and all different. A lot of the statistics that you read do not apply to you.

    Here is a thread that contains a video that may answer a few of your questions

    https://bladdercancersupport.org/forum/8-non-invasive-superficial-bladder-cancer-questions-and-comments/47229-carcinoma-in-situ-dignosis.html#60107

    Other than that, you are just going to need to relax and get on with the treatment.

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • Alan's avatar

    Alan

    Member
    October 29, 2020 at 12:37 am

    I don’t recall what the %’s were on the studies I have read but, TA and T1 and high grade the majority still statistically will be able to retain their bladders. I never have tried to memorize actual numbers because everyone is different. The majority of us that have or had bladder cancer will pass away from something else. Like most cancers, early detection is the key.

    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Sign In to reply.