Home Forums All Categories Men and Bladder Cancer will the real neo-bladder please stand up!

  • will the real neo-bladder please stand up!

    Posted by joel on November 5, 2010 at 2:51 am

    I read somewhere that men with neo-bladders must sit down to void. This will throw a real wrench into my backpacking and hunting recreational habits. I’m up for the surgery next Monday – what is the real-life experience of you veteran neo-bladder guys? Joel


    mmc replied 14 years, 3 months ago 5 Members · 6 Replies
  • 6 Replies
  • mmc's avatar

    mmc

    Member
    November 7, 2010 at 2:34 pm

    Joel,

    Good luck!!!! Keep in touch with us when you can or ask your wife to.

    Remember: Chew gum and walk, walk, walk.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • Joel's avatar

    Joel

    Member
    November 7, 2010 at 1:19 am

    As usual, you’ve all been very helpful. Thanks. Well, Monday is the big day. We leave tomorrow for Chicago, then surgery early Monday a.m. See you on the neo side!
    joel


  • Jj803's avatar

    Jj803

    Member
    November 6, 2010 at 10:43 pm

    I usually void in the seated position as I think I more effectively empty the neobladder that way. When away from home and bathrooms are dirtier than I like or sometimes at events with long lines, I use a urinal somewhat like the old days, but using the different muscles now necessary. I expect at some point in your recovery, you can void as completely as possible standing and get checked for residual urine. If there is none or a small amount, then standing should work. If there is significant residual, then it is probably a good idea to sit and get emptier. Urine the remains in the bladder or neobladder is prone to becoming infected which is good to avoid. I know of some men who have had their residual tested after standing to void and are completely empty, so as with so many things individual experience varies.

    jj

  • mmc's avatar

    mmc

    Member
    November 5, 2010 at 4:10 pm

    When I didn’t need to cath, in the early days after my neo, I was able to go standing up. It wasn’t quite as effective for getting completely empty but sometimes the bathroom at the golf course was pretty gross. I think a lot of men are still able to stand and go but sitting is better to get completely empty.

    Of course, now that I have to catheterize, I stand all the time.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • leeh's avatar

    leeh

    Member
    November 5, 2010 at 2:39 pm

    Huh???? I never heard that and 90+ % of the time I void standing up. Not hitting the back of the bowl like when I was 20 but pretty effective none the less. Sometimes if I feel like I am not fully empty I will finish sitting down but most of the time I don’t do that.

    Lee

  • 's avatar

    Guest
    November 5, 2010 at 4:22 am

    Yep thats what most of them recommend…I know Dr. Bochner does at msk…..here’s a page from U. of michigan
    http://www.med.umich.edu/urology/PatientInformation/other/MANAGING%20YOUR%20NEOBLADDER.html
    pat

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