Home Forums All Categories Metastatic Bladder Cancer What else can go wrong?

  • What else can go wrong?

    Posted by bobmac2 on May 23, 2008 at 2:01 pm

    Bob was supposed to have Chemo yesterday. The blood work from the day before was good & the recheck an hour before was OK. They start with hydration. Well, they started pumping him full but………….his new bladder decided to keep it all in.He couldn’t pee. The nurses tried to put in a catheter but couldn’t (imagine the pain), he got nauseous, they called for a Urologist but had to give him Gravol & Morphine while they waited. It was quite a wait. When the urologist arrived, he managed to get a catheter in & empty him. They took out over 2 litres. We have an appt. with out original Urologist this morning- the appt. was supposed to be about the hernia but now it’s about this latest problem. So, Chemo is now scheduled for Mon. I’ll update later- Regards, Lorrie

    bobmac2 replied 16 years, 8 months ago 4 Members · 8 Replies
  • 8 Replies
  • bobmac2's avatar

    bobmac2

    Member
    May 31, 2008 at 4:59 pm

    Thanks Ginger- it looks like Chemo will start again on Monday. Keep your fingers crossed. The Urologist decided to keep the catheter in for at least a month. Here we go with the constant flushing again- he still gets tons of mucus. He had a bad night last night & had to take the morphine to get to sleep- he is starting to get very sore from the catheter but has no symptoms of infection yet. I’ll keep you up to date. Regards, Lorrie

  • 's avatar

    Guest
    May 27, 2008 at 7:28 pm

    Lorrie,
    Poor Bob, I know its the last thing my husbands wants, to be catherized, and having a problem getting it done,,thats terrible. By now these interruptions are frustrating, then you hope the care facility can handle it, I for one will not take Gene to any other hospital but the Cleveland Clinic with these issues..he hates the ER, AND DOESN’T WANT ANY PART OF IT..can’t blame them, they have been through alot,as to this issue I pray things get better for you, and he gets his chemo soon,
    it would be nice if your road was a little smoother to travel than the bumpy one you are on….just a little break for you both,,,, Ginger

  • leigh's avatar

    leigh

    Member
    May 27, 2008 at 12:37 pm

    Hello Lorrie,

    It must be a great relief for Bob to have the catheter, wearing and changing diapers and bed pad every hour or two must have been exausting for you both.

    As mentioned on a previous post I too became totally incontinent in the evenings when I slept during the week after the cisplatinum chemo. For me though it was temporary although just for those times it was really exausting.

    You guys have had this since the RC was performed and I cannot imagine that at all it must have driven you both to the edge.

    I am not suprised he is sleeping far better with the catheter…I hope you are catching up on well needed rest too.

    I think the discomfort of the catheter will ease over the next couple of days once he gets used to the tube and bag. At least mentally he has gained control once more as he will be the one to empty the bag. Something he has not had for so long with the incontinence.

    Lorrie I wish you and Bob all the very best and hope he has the strength soon to start his treatment.

    Best Wishes
    Leigh


    Leigh, 39
    Dx July 2007
    TURBT July 2007
    RC/Neobladder ,Studer Pouch, September 2007
    Erasmus Centrum Rotterdam
    TNM Classification: pT4 N2 Mo
    4 cycles aduvant chemo Gemzar & Cisplatinum
  • bobmac2's avatar

    bobmac2

    Member
    May 27, 2008 at 11:09 am

    Good Morning Leigh- No, He still hasn’t had Chemo. Now he has come down with a bad cold (he overdid it on Sunday helping me with gardens), so Chemo must be rescheduled again when he feels better.

    We saw the original Urologist last Friday, the appointment was made because he has a hernia near his belly button. He doesn’t want an operation, he was just looking for a ‘binder’ of some sort to give him relief. The Urologist agreed on not having surgery & made a few suggestions. He also decided to leave the catheter in for a month since it was such a big deal to get it in. This sounds weird but Bob is actually happier with the catheter than the diapers. He is sleeping quite well instead of getting up every hour or two to change a diaper & bed pad. He ‘winces’ every time he gets up or down from sitting & can’t move too fast but says it’s an improvement on diapers.

    How are things with you Leigh?- I read your posts about the grading & staging- I think they do it differntly in Canada, so I really had nothing to add- I hope you can get the answers you need.

    We are hoping to get back on track with the Chemo soon- I’ll post when I know more.
    Regards & Thanks to all for all your help- Lorrie

  • leigh's avatar

    leigh

    Member
    May 27, 2008 at 8:16 am

    Dear Lorrie,

    I am so sorry to hear about Bob and his recent problem with a blockage. Tht must have been very difficult for you both. I hope that the morphine helped to ease the pain until they got the cathether in.

    Bob really has not had a break and you guys really deserve one…I am sending you both positive thoughts and hope that the chemo went ahead as planned yesterday and he sailed through it with no effects…

    Wishing you both all the very best…

    Leigh


    Leigh, 39
    Dx July 2007
    TURBT July 2007
    RC/Neobladder ,Studer Pouch, September 2007
    Erasmus Centrum Rotterdam
    TNM Classification: pT4 N2 Mo
    4 cycles aduvant chemo Gemzar & Cisplatinum
  • momof4's avatar

    momof4

    Member
    May 25, 2008 at 2:50 pm

    Peter,

    You are very kind, and your sentiments are greatly appreciated.

    Thank you,
    Karen


    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

  • 's avatar

    Guest
    May 23, 2008 at 3:31 pm

    Lorrie and Karen,

    The world would be a better place if people were as loving and caring as you two are. I choke up when I read your posts and my heart goes out to Bob and Angelo who are very lucky to have you guys. My thoughts are with you.

    Regards,

    Peter Konomos

  • momof4's avatar

    momof4

    Member
    May 23, 2008 at 3:06 pm

    hi Lorrie,

    I think that situations like you are going through are so difficult. If I could offer a suggestion…If you are a “Planner” like I am…(I always needed a “Plan”)…Metastatic Bladder Cancer is going to try to get the best of you. It hates “Plans”…and Appointments…they often turn out differently then the “Plan”…It takes a while but you have to roll with it…I sing that Stevie Winwood song “Roll with it Baby”…The thing is…a lot of things are going to happen…you can let it mess you up each time…or just keep saying OK…OK…OK…it can become so overwhelming otherwise…There are so many “Little” issues that come up with Metastatic Cancer…save you energy for the bigger ones that come up too…otherwise you will burn out so fast…

    You guys are in my thoughts,

    With Love,
    Karen


    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

Sign In to reply.