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  • Waiting for my first cystology

    Posted by crptclrwomn on April 28, 2008 at 10:38 pm

    Hi, A little detail about my situation. First of all I am 52 years old and female.
    January 2005 went into the hospital with blood in urine, there was clotting and elimination was painful. They assumed it was an infection initially then because of the pain thought it was a stone. After testing, (which was the x ray with the contrast dye) they decided the stone had passed although there was never any evidence of a stone. The urologist came in and asked simply “why are you in here now” My response was simply that the gp put me in here to find out why there was blood in my urine. I really do not think he took this seriously although he did tell me that when I got home to make an appointment with his office and he would do a cystology. I did not do that because I had no bleedig and thought I was ok.
    February 2006, another episode of blood with clotting and again trip to the gp, he gave me antibiotics again and the blood went away and the follow up appointment came up clear. No problems.
    2 more trips to the doctor (gp) 2006 and 2007. I was having pain upon urinating and thinking it was an infection. Tests showed no evidence of infection, so he treated me for a yeast infection both times. Seemed to get better, but continue to have back pain that is so bad that I cannot move.
    February 2008, Got a fever with back pain and for me that seems to be the norm, the fever comes and goes and I went to gp to find out if I had that dreaded flu, got antibiotics and anti viral medication. One week later, got the blood in urine again and this time it was with lots of clotting and it was very painful. Once again my gp said, bladder infection. Antibiotics. Finally I decided it was time to see uro. Made an appointment and talked to his pa. He suggested an xray with contrast dye. The nurse told me they found nothing. A small cyst on my kidney which was not a concern she said.
    Now after another four weeks, I will have this next test. I have a terrible backache, It is in my lower back. I have had it off and on for years but this time it is not helping. I cannot take anything except for tylenol.
    It will be in 6 more days. I hope it shows what is wrong. Can you help me? Tell me what to expect and how long before I know anything. Thanks for all you do.

    tahoemom replied 16 years, 9 months ago 9 Members · 27 Replies
  • 27 Replies
  • tahoemom's avatar

    tahoemom

    Member
    May 2, 2008 at 3:31 am

    Good luck with the whole dang thing , sweetie. (((((crptclrwomn)))))

  • crptclrwomn's avatar

    crptclrwomn

    Member
    May 1, 2008 at 6:12 pm

    Thank you all from the bottom of my heart. I went to the gp for fever and back pain and recieved antibiotics. So I will be thaking these for a few days. He said the fever is a result of some infection, so this should help. My back ache he said would be over exertion. Ok, I am good with that. Just want Monday to get here and get it over with. Thanks all of you. I will keep in touch and my prayers are with all of you. Patty

  • crptclrwomn's avatar

    crptclrwomn

    Member
    April 30, 2008 at 7:28 pm

    Dear Susan, Thank you and you are absolutely right.

  • mssmr's avatar

    mssmr

    Member
    April 30, 2008 at 4:20 pm

    Hi, Patty — Your history is all-too-familiar!! I, too, had blood in the urine for years, no sign of infection, antibiotics and no referral to a uro. (You can read the story of my delayed diagnosis under trenchtalk, I think.)

    The thing is, since our society hasn’t begun to do the job it should about educating everybody about bladder cancer, we don’t know much about it before we are diagnosed. Before my diagnosis I thought Urologists only saw males. If I had it do do over again, I’d have made an appointment directly with a urologist as soon as I
    started to suspect bladder cancer rather than thinking: The doctors aren’t even mentioning it, I must be “over-reacting.” But I don’t have it to do over again.

    I am glad you are getting the cysto and that it is fairly soon. Please let us know how it goes. We do care.

    in support — Susan

    diagnosed 2/23/07 at stage 3, muscle invasive, sarcomatoid tcc

  • 's avatar

    Guest
    April 30, 2008 at 3:11 pm

    OK…i know this is daunting with all the medical terminology and the machines and what is what…but i think we have it figured out sort of!!…from what you said..it appears you did have a CT scan with dye the last time as you said you were lying on your back and went into a round machine and they put the dye in through the vein. They normally do one scan without the dye and one with it. The nurse told you they saw a cyst and not worried about it. What kind of hospital and whats the level of expertise of the radiologists i wonder? I know cysts can be painful as one of my sons has one..he had quite a bout of pain one morning and they thought a kidney stone but only found the cyst…a large one. Apparently they can spasm??
    But i am alarmed as Barb is about the fever. So hopefully you have a good uro and you will know something Monday with the cystoscopy.
    I wouldn’t hesitate for a moment though to get that second opinion from the U of Chicago. You’re lucky you are in an area with a great hospital. Pat

  • Barbnks's avatar

    Barbnks

    Member
    April 30, 2008 at 12:54 pm

    I don’t want to beat a dead horse either but the fever coming and going bothers me. I had so many of your symptoms and it didn’t start with bladder cancer. Be firm to them that you want a CT scan. My fever and pain would come and go that is why none of the doctors I saw thought it was anything but a UTI. The lining of the bladder is the same as the lining of your kidneys that is why my cancer is now showing up in my bladder. Hope to hear from you soon. Barb
    Just worried about you so don’t mean to keep repeating myself.

  • crptclrwomn's avatar

    crptclrwomn

    Member
    April 30, 2008 at 10:09 am

    Cystoscopy. Sorry Thanks

  • crptclrwomn's avatar

    crptclrwomn

    Member
    April 30, 2008 at 10:01 am

    sorry cystoscopy

  • 's avatar

    Guest
    April 30, 2008 at 3:19 am

    I’ve got to know why you keep calling it a cystology? What procedure is he doing?
    Pat

  • rosemary's avatar

    rosemary

    Member
    April 30, 2008 at 1:55 am

    Patty,

    I’m not a doctor, and I don’t mean to beat a dead horse, but, isn’t fever usually an indication of infection??? Have you had blood drawn for WBC count??? I’m really confused about this as I have never heard of fever being a symptom of bladder tumors or CIS…

    Best,
    Rosemary


    Rosemary
    Age – 55
    T1 G3 – Tumor free 2 yrs 3 months
    Dx January 2006
  • crptclrwomn's avatar

    crptclrwomn

    Member
    April 30, 2008 at 12:01 am

    Thanks for your concern Rosemary, I asked the gp and since the fever comes and goes, he said just to take the Tylenol but nothing else until I have the cystology. So, today, I had it around 3 but now it is gone. So hopefully it is not serious. I will keep an eye on it though. I just thought I had the flu or something but it has lasted for 4 months so I know that is not the case. You are great. Thanks
    Patty

  • rosemary's avatar

    rosemary

    Member
    April 29, 2008 at 11:21 pm

    Patty,

    I am concerned about the fever you are having. If the fever and pain is persisting, I hope that you will contact your Doctor and/or the ER if neccessary…

    Please let us know.

    Best,
    Rosemary


    Rosemary
    Age – 55
    T1 G3 – Tumor free 2 yrs 3 months
    Dx January 2006
  • wsilberstein's avatar

    wsilberstein

    Member
    April 29, 2008 at 9:47 pm

    Dear Patty:
    From the nature of your posts and the answers I’m certain you’re talking about a cystoscopy, but since you’re calling it a cystology, the obsessive part of my brain keeps saying, “What if the doctor is only offering to do a cytology?!?” So just in case it’s not clear – a cytology alone at this point would not be adequate. My cytology was negative, but the cancer was still there at cystoscopy.


    -Warren
    TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
    Urethral stricture, urethroplasty 10/2009
    CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
    T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
    Incontinent. AUS implant 2/2014. AUS explant 5/2014
    Pediatrician
  • Barbnks's avatar

    Barbnks

    Member
    April 29, 2008 at 8:56 pm

    Speaking from someone who had the same symptoms as you with back pain and all I would recommend they do a CT scan of your kidneys. I was Dx with kidney cancer first and had to have it removed last July. Since then it has moved into my bladder and I deal with that every 3 months at my checkup. I would say yes to the cystoscopy but I would tell them you want a CT scan of your kidneys. Blood in the urine is a big sign of that. I was treated for 3 months (different Dr.s because we were traveling) for urinary tract infections and it turned out to be cancer. Please let us know how everything goes. Please have a CT scan of your kidneys though, I had the same pains.
    Barb

  • crptclrwomn's avatar

    crptclrwomn

    Member
    April 29, 2008 at 4:51 pm

    Rosemary, Thank-you. I know that you are a wonderful person and I am ready for Monday. I have learned so much from you all and whatever happens, I am ready. You people are a blessing like a gift from God. Thanks. Patty

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