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Urothelial cancer in the left kidney
That is what Doug has. It is the same cancer that was in the bladder, still in the urinary tract — only in 2 – 4% of bladder cancer patients does the cancer move to the kidney. The plan is for Doug to have Gemzar installed in his bladder 6 Fridays in a row (skipping Thanksgiving week), then wait 4 weeks and repeat the exploratory surgery and see if it is working in the kidney. Doug wanted a chance to try to save the kidney. I am also trying to get him scheduled for an appointment at Vanderbilt, just to confirm he is headed in a good direction. Glad we have a plan.
Anita
Anita
Forum Moderator
Caregiver34 Replies-
Hi Anita… I hope Doug’s appointment went well. Is there any follow up treatment as a result of the path report?
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
We got the pathology report last Monday — aggressive, T3. Tuesday, we go back to Nashville; they will make sure the bladder is sealed (where they had to cut the cusp) and if it is the catheter will come out!!!
Anita
Forum Moderator
Caregiver
Glad it is good news!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Glad your surgery went well, and the news was good! Wishing you a swift and uneventful recovery,
Diane
This was great news, Anita.
I have also thought about you much.
It must be a great relief for Doug, you and the rest of your family.
I wish him a speedy recovery, and soon you will be out dancing again.
Sincerely,
Knut
Diagnozed first time April 1th 2004.
Muscle invasive, T3A.
Radical Cystectomy June 29th 2004.
Illeal conduit. Bag on my stommack.
What good news, and what a relief!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Hi Anita… Like Cynthia, I have thought of you two many times today. That is great news that it appears to be confined to the kidney. Let Doug know the forum team is cheering him on! I know it has been a long day for you as well. Hope you can rest a little bit tonight. I remember they came around about 10:30 that first night to get me up to walk and I was glad to have a good friend staying in the room with me. Take care of you, too!
Here’s to cancer-free days ahead!
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
I have thought of you two a hundred times today. Hope all the news is great here on out. Make sure to take care of yourself as well.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
Thank you Cynthia, Knut, Catherine, and Sara Anne,
Love you all. You all are so special to me!
Anita
Anita
Forum Moderator
Caregiver
Joe,
Thanks so much. That is encouraging. Doug’s surgery was 1:35 till 6:35. He is in recovery. We will get to see him in about an hour (9:30). The really GOOD news on Doug is that the cancer is not outside the kidney.
Anita
Anita
Forum Moderator
Caregiver
Anita and Doug,
Thinking of you both… I am 4 weeks post ureterectomy/bladder cuff and am very mobile with little discomfort. I hope Doug shares the same recovery!
45YO male
11/30/2015 Left nephrectomy
2/17/2016 left ureterectomy
8/10/2016 cyctoprostatectomy w/ileal conduit diversion
Cancer free since!
Will be thinking of you both…..
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Anita, first words of encouragement. Having my kidney removed was not that bad of a surgery pain was not bad and was up and going pretty well in a few weeks. Tell Doug to take it easy and make you wait on him hand and foot…not lol make him get up and and walking as soon as they give you the red light. I think I was in three or four days and not on a lot of pain meds when I got out.
I hear what you say you feel like you are being unfaithful going out with a new Surgeon but send you old one flowers or candy and all will be forgiven. You are right to go with experience so don’t feel guilty for doing the right thing.
Both of you take it easy. We will be here and you will be in my heart and mind. Let us know how wonderfully he does as soon as you can.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
Doug’s surgery will be Monday at Vanderbilt. His local doctor only does one or two nephroureterectomy surgeries per year, so I really pushed him to go to someone who does more. Doug has been with his urologist for 15 years, so we felt almost like two timers going elsewhere. I think we made the right decision. Doug will be in the hospital 3 -5 days. I’ll let you all know how it goes.
Anita
Anita
Forum Moderator
Caregiver
Sorry to hear this, Anita.
But I know several that live with one kidney, including my own father. He had it removed some 13 years ago and is still living normal. He turn 86 later this year.
I hope that it is only scars in the bladder so it can be kept. Should it be otherwise you can also live a good life. Just look at all us bladderless at this forum.
Doug is lucky that have you as a support and caregiver, and you are a good team together.
I cross my fingers for you.
Sincerely,
Knut
Diagnozed first time April 1th 2004.
Muscle invasive, T3A.
Radical Cystectomy June 29th 2004.
Illeal conduit. Bag on my stommack.Sign In to reply.
